Help a mummy out!

So I am actually not really sure what I am hoping from with this post, reassurance I guess.

Brief back history, my 11yr old daughter has had a problem with her knee for 4 years and I have tried numerous times to seek help but kept getting dismissed. Until earlier this year after seeing a lump in her knee and her knee keep giving way on her our gp sent her for an mri. Called a couple of weeks later from the gp to be told she has a loose body and he will refer to orthopaedics. We go to get the surgeon who says yes indeed she has a very large lump and will need open surgery to remove it. Surgery scheduled for September. Then out of nowhere I get a call for her to have another mri only with the contrast, the next day. Thought it was strange but assumed it was prep for the op. 6days later I receive a letter telling me my daughter is now under the care of the sarcoma team at an orthopaedic hospital and we are seeing the oncologist next week. Out of nowhere! After many calls a completely different consultant calls me and says he believes the lump is a tumor and its grown and changed since her last mri. I am just wondering how accurate are mri scans? And would they do this referral if they weren't concerned?

  • Hello MrsGBarlow

    I'm so sorry to hear about all that you and your daughter have been through particularly over the past few weeks. It's understandable that you may be feeling worried and have many questions about the upcoming appointment, particularly since this news has come out of the blue. 

    It sounds as if the specialist orthopaedic team is moving swiftly and sometimes this can feel reassuring but also it can feel as if you're being swept along with no space to breathe. 

    Ahead of your next appointment, I'd suggest you write down any questions that you have so that you can take the list to the appointment with you. You might also want to give our team of nurses a call to talk things through with them. I'm sure they will be happy to offer any advice and information that they can along with helping you think about any additional questions that you may want to ask at the appointment. If you'd like to chat with them they're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

    Whatever news the team gives you at the appointment, know that we're here to listen and offer any support and guidance that we can. Keep in touch and let us know how you both get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Thank you for your reply Jenn, you are absolutely right I feel like I am drowning to be honest. The speed at which everything is moving is frightening me more than reassuring. I have been told original surgery that was booked for September is unlikely to happen now. She is starting secondary school in September. I just can't believe what's going on, I lost my dad 3 weeks ago really suddenly so I just finding everything hard to process

  • I'm so sorry to hear about your Dad, MrsGBarlow. It's obviously a really difficult time for you all at the moment. I hope that you have a good circle of family and friends around that you can lean on for support. 

    Give our team of nurses a call next week and chat things through with them. I know that many forum members have found it helpful to talk to someone. I'm sure the nurse team will be happy to listen and offer any advice and support that they can. 

    Keep in touch and let us know how you're both doing. 

    Best wishes, 
    Jenn
    Cancer Chat moderator