Cancer Research UK main site

12 Year old Daughter with raised CA125

maria1981
Offline

Hi

After a lot of googling I've ended up here and I'm terrified.

My 12 years old daughter started her periods around 18 months ago and for over a year they were normal and came like clockwork.

These last few months a lot heavier and lasting a lot longer right up to the current one where she's been bleeding consistently and heavily for now 7 full weeks.

She had bloods done 2 weeks ago. Anaemic (to be expected) and CA125 level of 37.

They repeated the tests on Monday this week and I had a call today to say the CA125 is now 58. 

  • Offline

    Raised CA125 doesn't mean it's got to be cancer as lots of benign things can cause this too.

    In our family someone had to have large ovarian cyst and ovary removed in teens. It was before they measured things like CA125 but ovarian cysts can caused raised CA125 I think. The cyst was benign. I think endometriosis, pelvic inflammation and some other conditions can also cause it.

    I see from your first unanswered post that your daughter has been referred for a scan. This will be to look at the ovaries etc and is the normal next step when there is raised CA125 above a certain cut-off.

    This doesn't answer your original question, but may help you understand there are a range of things this raised blood test result could be.

    You could post a question in Ask the Nurses – the nurses don't work over the weekend – or give the CRUK helpline a call on Monday to understand more about the CA125 blood test and ultrasound scans.

    Hope everything works out well for you and your daughter.x

     

  • Offline in reply to RoseStarBlue

    Thank you for replying.

    I don't know why it didn't copy and paste my original post.

    Yes she has a scan on 12th August which just can't come quick enough.

    I just feel so worried and so sorry for her. She doesn't know about the raised levels as I don't think there's any need to tell her.

    im not convinced it's endometriosis as although she feels pretty rubbish she has zero pain.

     

  • Offline in reply to maria1981

    Hi - yes, I think it's wise not to say too much beyond preparing her for the scan. That is where speaking to a nurse helpline in advance could be helpful. You want a simple explanation like the scan is to investigate the bleeding so the doctors will know how to treat it. It's natural to feel worried but google can induce so much anxiety (often falsely) that children then pick up on parental anxiety. You don't want to make yourself ill worrying.

    You would be better telephoning a nurse helpline than doing your own google "diagnosis"/"worst-case scenarios". There are so many things this could be you can't possibly work out what it is. That's why the doctors are doing a scan to help provide a more detailed picture. Sending you a virtual hug. x

  • Offline in reply to RoseStarBlue

    So my daughter had her pelvic ultrasound on Friday. The GP rang today to say she had a 3cm cyst on her right ovary.

    She has an appointment on Friday with a paediatric gynaecologist.

    The GP said it was very common but I can't help but be worried about it.

    She is still bleeding daily without a break and it's so upsetting to see her sad.

  • Offline in reply to maria1981

    It's good the doctors have found a cause. Cysts are surprisingly common with a high likelihood it is benign.

    It is understandable you find this upsetting. Mums don't like seeing their children poorly and all that bleeding is very hard on your daughter.

    I hope the appointment on Friday with the paediatric gynaecologist goes well. Am pleased the doctors are seeing you so quickly.

    Sending love and hugs x

     

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.