Hi everyone,
I don't really know why I am posting, maybe just for some reassurance that I am not loosing my marbles!
I need to cut a very, very long story short but basically, I am 30 years old and spent Christmas 2021 thinking i had ovarian cancer after a gynacologist had an ultrasound done. Skip forward to February 2022 I had a 15cm cyst removed from my ovary.
I found out last month it was a dermoid cyst, and well there have been some difficulties with my care and i have had to push really hard on services to listen to me.
I got admitted to gynaecology ward 2 months after surgery in the worst pain ive ever experienced in my life. I was sent home after two days with no diagnosis and given an outpatient appointment for the end of june. A family member kindly offered to pay for me to have a private gynaecology appointment. The private gynaecologist found a cyst on my left ovary with a solid mass in the middle. Another one on my right ovary too that was multi ocular. However, this may just be a functional cyst.
I am absolutely worried SICK. I have bled vaginally since surgery, at least 3-4 times per week. More frequently now. I am sometimes passing egg sized clots. I am anemic too. I am constantly needing to pee and I am now noticing bowel changes too. I have noticed blood on a few occasions. I have been given provera medication but it hasnt stopped my bleeding. I have a sense pf pressure in my pelvis all of the time and the pain it is causing me at times has been unbearable. I havent had a normal period since surgery (pre-dating the provera). Im just not in a good place and I feel like I am being made to feel like I am loosing my mind. Even though I know in my heart of hearts something is very wrong.
I know ovarian cancer in young women is rare, I just wondered if anyone has any experiences on dermoid cysts returning after surgery or even finding out they had ovarain cancer after something similar to myself? My symptoms now are much worse than they were pre-surgery.
Any reassurance or information would be hugely appreciated, i hope you are all well Xx
