Really struggling -positive FIT test, anxiety out of control

I've made some previous posts about my ongoing problems with rectal bleeding that you can find on my page as a bit of back story.

Now I've received a positive fit test and honestly I've convinced myself that I have terminal colon cancer that has spread.

I know how ridiculous it probably sounds but I truly cannot see how this could be anything else at this point. It has been going on far too long and because of my age I was just sent on my way multiple times.

I suffer from extreme health anxiety and I'm also pregnant which has just made this 100% worse as I won't be allowed any scopes until after I have given birth by which point I'm convinced there will be no point.

I'm really sorry for posting all this, especially when there are people on here who have their diagnosis and are really going through this horrible disease. I just don't know what to do, I'm so scared and all I do is spend my days crying.

  • Hi, first of all, don't be sorry for posting - you can post anytime and it's better to talk about your worries than keeping them bottled inside. There's a reason there's a pre-diagnosis section here. It's hard waiting to find out whether you have cancer or not, especially when experiencing ongoing symptoms. Your feelings are valid. There will always be someone who has a bigger problem. Just like how if someone was happy about something little, you wouldn't say to them 'there are people going through way better than you'.

    I know this is very terrifying but the FIT test just means that you have rectal bleeding which you already knew. So many things can cause rectal bleeding like piles, fissures etc. It is also reassuring that your test was slightly raised, meaning that there wasn't much blood. It is still good that you got yourself checked just incase and you should update your GP if you get new symptoms/ if they persist. The chances of it being cancer at your age are low but I know it's easy to think the worst, especially when you have health anxiety and just want to enjoy your pregnancy.

    Also if self help for health anxiety isn't working, I suggest you go to your GP. It's hard enough to go through symptoms and wait for a referral, let alone have to deal with health anxiety making you think the worst.

  • Length really means nothing about what it is. It really sounds like it's probably piles in your case, and it would be pretty common, I think, for them to go on for the whole of pregnancy. People can have them for years.

    And as Amelia says, don't be sorry for posting. Yes, there are people here who have cancer and in your case, it's pretty unlikely, but...there's a saying something along the lines of just because there are people who have permanent disabilites doesn't mean a broken leg doesn't hurt. It's not like the one person with the right to worry or complain is the one who has the worst problem in the world.

    You are going through a frightening situation. Yeah, it's very likely there is little or nothing wrong with you, but you are still waiting for test results just in case, and it is hard to avoid thinking, "but somebody has to be that one in 100 or one in 500; they wouldn't be testing unless there was some chance". And the fact that you are pregnant probably adds to things. I had a colleague who had skin cancer at the same time I had thyroid cancer, both with very good prognosis, neither of us even missed more than a month of work, but she was far more worried about the possibility of dying than I was and I think it was because she had children and even a tiny chance of not being around for them was terrifying. That probably increases when you are pregnant. Even knowing this is highly unlikely to be anything worse than something like piles, you are bound to have moments when you question, "but what if it is and I need treatment just when I want to be with my baby?"

    Plus, it is pretty upsetting to have something like this distracting you from what should be one of the happiest points of your life. 

    And health anxiety in itself is a hard thing to deal with. There seems to be a tendency to treat "health anxiety" as if it's just "googling too much" and can be solved by "not thinking about it," when it is a genuine medical condition. Are you getting any treatment for that?

    Colon cancer is unlikely. Rectal bleeding is common and can be caused by many things. If you do have piles, the odds are you will get rectal bleeding and quite likely a positive FIT. But that doesn't mean tests aren't worrying. Heck, even routine tests can be worrying, as there is the possibility of something worrying being found. I even find the moment before an eye test where they scan the back of your eye a bit scary.

    Terminal cancer is even more unlikely. I read that it usually takes about 10 years for a polyp to develop to the point it becomes cancerous. It then usually takes many more years to get to the point of becoming terminal. For you to have terminal cancer, you would probably have had to have bowel cancer at the age of 20 and would have had to have polyps in your teens. That's not impossible but it is unlikely. Even in the unlikely case that a polyp is causing the bleeding, there is no reason to believe it is even cancerous, let alone at a terminal point.

  • Hi guys, sorry I'm only just replying I've been trying to limit my time online as I know that this makes my worrying worse.

    I have had what we believe to be piles and these symptoms since before becoming pregnant so I worry that now that I am pregnant my symptoms are now being put down to this instead of being taken seriously.

    I do have an appointment on Saturday with a colorectal specialist to discuss everything that's been going on and my positive fit test. Though I have been told that they won't be offering me a colonoscopy at this time due to my pregnancy but they will probably do a proctoscopy. 

    I'm still terrified that something other than just my piles will be seen and all I truly want is to be told I have piles and for that to be the end of it. I just really want my life back.

    Sorry for rambling, just thought I'd update you guys.