swollen lymph nodes for over a year

i've never posted anything, but i'd really appreciate some peace of mind. 

i've had swollen lymph nodes for over a year now. i first called my doctor in march of this year, after my friend pointed out that it wasn't normal for them to have been swollen for that long (it was not very big, but when i turned my head you could see the outline). my doctors referred me for a scan which basically just said they were swollen (as if i couldn't tell that by myself) and left it at that. around this time both me and my mum started getting tiktoks of people with hodgkin's lymphoma which has left me very paranoid as i shared a lot of the symptoms as the people raising awareness. Like itchy skin, fatigue, random bruising, and night sweats. I called my doctors again at the start of July, as they were still there and haven't gone down. everywhere i've searched has said they should go down in around 2 week. my doctor just said "well they're swollen" and when i asked why she just said it was normal. and i'd normally accept that, but in the same phone call she told me me throwing up in pain during my period is normal, so i just don't really trust her. I told her how my friend's (who had similar symptoms) doctor is pushing to see if it's cancer and she just told me it isn't cancer just a swollen lymph node and sounded more irrated at me and left me uncomfortable pushing it any further. I really want to believe her and just not stress, but i can't find anything that says you can tell if lymph nodes are cancerous in a scan, everything is saying a biopsy is the only way to tell if its cancerous. and if it's not cancer then why do i feel so terrible all the time? It feels like my body has aged years, i'm exhausted and don't know where to turn. 

 

sorry for the rambling! but any advice or reassurance would be greatly appreciated. 

  • Hi there!

     

    I have had swollen lymph nodes for more than 4 years now. I can fully understand you. Back then I was only a student so not so much money for investigations. My mom is a GP and she didn t want me to have any further investigations as she thought I was paranoid. She got mad and even threatened me to put me into psychiatry if I didn t let it go! My boyfriend back then was on her side so basically I had no one. I am not living in the UK. What I Ve done, I went private and paid for so many medical investigations just to make sure there is nothing to worry about. I went to hematology, ultrasounds, dentists, dermatology, gyn, surgeons and anything that could have been related to my swollen lymph nodes. My bloods were a mess. I Ve been told it could be the anxiety and the fact that I Ve stopped eating and drinking. I also had panic attacks during the night. I started eating again and then the bloods were just fine. Regarding biopsy, no surgeon would have done it because the ultrasound said only inflammation. The surgeon said that he would n know which swollen lymph node to biopsy as all of them showed only inflammation to ultrasound. So it was a guessing game, he could have just cut me for nothing. I kept them under supervision and went to ultrasounds twice a year. Nothing changed. I went to the best doctors in town. Eventually I gave up. I still have one under my armpit, submandibular and one in the neck. I have no other symptoms and my bloods are fine. I' Ve had them for like 4 years but they could have been longer, I only discovered them 4 years ago.

    What I m trying to say is that sometimes they never get down. And also if you are a thin person, some lymph nodes can be felt and confuse you that they are swollen which might not be the case.

    I advice you to find a good doctor to do an ultrasound and keep them under supervision. Also a good hematologyst for blood check up...

     

    All the best

  • Hi how are you have you still got your lymphnode