Ovarian cancer & prolapsed uturus

Hi everyone,

I am posting this to learn a little more as the doctors suspect my mum has this...

 

She is 57 years old, relatively healthy. We went to a and e as she was experiencing a heavy chest, shortness of breath, right side pain, back ache, nasea and feeling of being full up. The doctor did a blood test and said she has a minor infection and prescribed antibiotics. Fast forward two weeks, the pain in the chest hasn't occurred since but the other symptoms remained. I toom her to hospital today  the doctor said he can see something on her right ovary and referred her for the 14 day investigation for a transvaginal scan. We ended up paying for it privately this evening - this Dr said she can see her uturus is prolapsed likely due to pregnancy, and a 10cm cyst on her left ovary containing hard mass. She said there wasn't a blood supply in the cyst which meant it could be good news but said its 50/50 it could be cancerous. She suggested it's removed ASAP and has types up a report that we will send to her gp. She said the crucial one is to remove the cyst and then look into the prolapsed uturus of course dependant on further investigations.

I was wondering whether anyone has experienced this and what the outcome has been? 

Parents
  • I am over 65 and bilateral ovarian cysts were removed last November, they were complex cysts so potentially cancerous they were found during a colonoscopy for left sided pain. After MRI, ultrasounds ect bloods l had surgery 8 weeks later. The left overy was difficult to locate and remove due to extensive adhesions due to previous surgery everything was stuck together, the oncology surgeon was used to difficult surgery and spent over 4 hours removing it all. 
    Fortunately the biopsies were benign. 
    Take care l hope you have a similar outcome 

    Susie 

  • Thank you Susie. All the best,

    Anna

  • My mum had her MRI and a contrast CT scan today for her chest, stomach and pelvis. They've said her gynacologist will receive the results in a few days or up to one week. Why would they scan other areas - I feel like they might know something but aren't telling us. No ca125 results yet - the blood test was done on Thursday last week so there is probably a delay due to the weekend.

     

    Thanks

    Anna

  • Hi I'm 67 ....post menopausal 

    A 5 cm cyst was found accidentally on my left ovary 

    during a MRI of my lower back as I'm having soo

    much pain .

    like your mum the pain is on my right side 

    it's sharp I can hardly walk a times with it 

    yet the cyst is on my left ......

    I had a CA125 on Friday .. got the result today 

    it was normal ...

    I've not yet seen a gynaecologist... going privately on 

    Monday to see him for transvaginal scan..

    I hope your mum gets her blood results soon and the results are good abd 

    I hope the surgery all goes well . I think 

    they are doing all the scans for pre surgery assessment 

    Rosie xx

Reply
  • Hi I'm 67 ....post menopausal 

    A 5 cm cyst was found accidentally on my left ovary 

    during a MRI of my lower back as I'm having soo

    much pain .

    like your mum the pain is on my right side 

    it's sharp I can hardly walk a times with it 

    yet the cyst is on my left ......

    I had a CA125 on Friday .. got the result today 

    it was normal ...

    I've not yet seen a gynaecologist... going privately on 

    Monday to see him for transvaginal scan..

    I hope your mum gets her blood results soon and the results are good abd 

    I hope the surgery all goes well . I think 

    they are doing all the scans for pre surgery assessment 

    Rosie xx

Children
  • Hi Rosie,

     

    Thanks for your comment. It's moving to see how many people respond and just wanted to say thanks for taking the time, it's greatly appreciated.

     

    Did you have any other symptoms aside from back pain if you don't mind me asking?

     

    Just an FYI, we did my mums TV scan privately but then the NHS said they have to do it again... We did it in the hopes it sped up the process.

     

    Anna x

  • Hi 

    Thank you ..

    I don't know what a FY1. Is ? 

    yes I have other symptoms 

    Lower abdominal pain cramps 

    dreadful Irritable symptoms honestly the pain

    lots of flatuence , indigestion heaviness down below 

    but I've got a posterior prolapse so that could be the reason. .

    I had hysterectomy 24 yrs ago  

    only my left ovary was left for menopause reasons 

    That's why I don't understand such sharp groin pain in my 

    right leg .. I can't stand or walk at times 

    back pain is dreadful doing right down my leg to my foot 

    that's why I had MRI 

    these symptoms have been going on a long time 

    no one ever mentioned Ovary symptoms 

    but when. I researched  them I've got lost of them 

    which is soo worrying 

    I wasn't red flagged apparently I don't met Criteria 

    but I feel I do ..

    that is  why I'm paying for private consultant 

    the worry stress is making everything worse .

     

  • Sorry, the FYI is 'For your info'.

    I had a quick read online, there are definitely common symptoms between pelvic prolapse, cysts and cancer. There's no real way of knowing unless tests are carried out. I thought it was quite odd her pain was on the other side, the private Dr advised us she has a prolapsed uturus too which the NHS Dr didn't see in their ultrasound and apparantly that has similar symptoms. I've read a lot of cysts are benign but of course that doesn't help when we are all going through the same tests and wait. Wish you the best. 

     

    Anna

  • Do you know what kind of cyst you have? The below is an extract taken from my mums private scan:

     

    Findings: Technically difficult scan due to the axial positioning of the uterus and the overlying bowel gas.
    The uterus appears normal in size, contour and echotexture.
    The endometrium is thin and regular measuring 3 mm.
    No evidence of endometrial focal lesions.
    The right ovary is not visualized due to the overlying bowel gas.
    There is a complex left ovarian, predominantly cystic mass with solid components measuring about 50x43x36 mm.
    No associated vascularity is demonstrated.
    This could represent a cystadenoma however a more sinister pathology cannot be excluded.
    No free fluid demonstrated.

  • Hi ..

    My ? Cyst was found by accident on  MRI scan of my 

    Lower back .. 

    all I've been told by my

    GP .. that a cystic swelling on my left ovary 

    measuring 5 cm was found  ??ovarian cyst 

    and I needed to have scan and assessment 

    sorry im

    not much help .. I'll know more on Monday when I go privately 

    to see gynaecologist/oncologist...

    I had to plead with my GP to have the CA125 blood test .

    she wouldn't red flag me to NHS to

    get scan faster 

    I really don't know what I'm going to face on Monday 

    I'm extremely anxious 

    mall my pain is on the right side yet the ?? Cyst is on the left 

    It's a dreadful worry for you all ..

    I hope your mum will get good News 

    my friend had the same as your mum she had all removed 

    and it was clear .. 

    I hope that can help you xxx

     

     

  • Thanks for your reply. We will have to wait and see and keep our fingers crossed. The NHS should have just let you have the blood test! I know its easier said than done but please try and not be anxious, try and keep busy and hopefully you will have some good news on Monday - hoping it's nothing serious. I guess if the NHS were worried it was something really serious they would have referred you for urgent care  so that may be a good thing..

     

    X

  • Thank you soo much 

    I'll keep you posted ...

    Xx

     

  • Hi

     

    Just thought I"d let you know, my mum had her FIT blood test today too. She was told by her GP receptionist that these resultswill appear on the online GP app and be sent to the GP. The results for MRI, CT and CA125 will be sent to her gynacology consultant only at the hospital who she met with last week. They said these results won't appear on the online app.

     

    Anna

  • Hi

     

    I thought I'd share the latest.

     

    My mums ca125 has come back fine - we haven't been told kf the reading. The MRI and CT scan do not show any signs of cancer. However, they are unable to confirm whether the complex cyst is malignant or benign yet. They are having a meeting on Wednesday next week and will call on Thirsday with a plan regarding the operation. Its likely however she will need to have a hysterectomy which is fine because I don't want any more siblings anyway :)

     

    Hope this gives you some positive news as more often than not, mainly bad news can be found online! It can still be cancerous sof course we will need to wait but at least we have some news now.

     

    Anna x

  • Hi  Anna 

    That is good News .... CA125 normal result 

    Hopefully the operation won't be too long of a wait 

    and cyst will be benign.

    I hope you feel more reassured with the results 

    I know researching and Dr Google can make us 

    overthink ..

    I see gynaecologist on Monday evening 

    I really don't know what the outcome will be ..

    I'm delighted for you and your mum xx