Waiting for a colonoscopy

I have a colonoscopy booked and I am going through a rollercoaster of emotions. In my head there can be no other diagnosis but cancer and I am thinking and wondering what on earth lies ahead.  What is the prognosis if it is bowel cancer? will my life be taken up by a series of rounds of chemotherapy? What do I do now while I wait for the procedure?

I am hanging on to the thought that the symptoms were recent - a national screening was clear in May and apart from blood in my stools and a very recent slight change in bowel habits, I have few other symptoms. But the GP and consultant did seem to act as thought it was unlikely to be piles or an anal fissure.

I think this prediagnosis phase is so hard to go through. At the moment I just feel depressed. Part of me wants to hope for another explanation and part of me knows I need to prepare for the worst. It is a very frightening thing. Wondering if anyone else is going through it or has gone through it recently?

Sorry - just needed to blurb as I'm feeling a bit alone with this

Parents
  • Hello, waiting is so difficult and it does make our minds think of so many different scenarios. Going through symptoms at the same time is so unpleasant and scary.

    When I first had symptoms back in March, I was consantly googling my symptoms and reading other people's stories. I was so scared and overwhelmed. It was a sudden and new health concern and it's natural to be frightened and think the worst. I definitely thought the worst was going to happen.

    With time, I realised it's a good thing that I'm on a referral list as it means I'll find out soon what is wrong and hopefully it can get treated. I just thought that the only thing I can do now is to keep track of my symptoms and keep my GP updated.

    Of course it is easier said than done. I still do get frightened but I try to think at least I'm going to be seen soon and that it could be so many other things. When cancer comes to mind, I try to think that bowel cancer grows very slowly so hopefully it is in the early stage if I have it so then it can be treated and cured.

    When I think the worst, I try to think that there's people who die unexpectedly so maybe it is good to have a warning. I am religious so it helps me to think like that, but I understand that other people may find this thought doesn't help so I apologise if that was upsetting. 

    Also talking through your feelings and worries may help aswell. Whether it is on here or to someone you trust. I used to talk to my friends but quickly realised they didn't like me constantly talking about my symptoms, especially because they think nothing's wrong. So I thought it would be better to talk to people going through similar situations instead.

    I hope some of what I said helps. 

  • Thanks Amelia98

    That seems like a good philosophy to have!  I'm glad you got your referral. Hope all goes well for you - you have had a long and anxious wait!

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