Cannot get help - the nhs is going to let me die, I’m scared

I've been trying to get a 2ww referral now for 7 weeks. I've been to 10 GPs, A&E, and the worst specialist in existence, everyone wants me to wait. Wait 38 weeks for appointments, wait 7 weeks for a CT scan, I'm not going to sit around and let the NHS just let me die but I've tried so hard I simply do not know what to do any more.

last night I did the NHS Scotland recommended head and neck cancer risk calculator v2. A score over 7% is grounds in Scotland to be seen immediately. I scored a 52% probability of head and neck cancer, and spitting blood wasn't even one of the options. I have no doubts, I feel like I am dying, I only get worse day by day. No one lifts a finger to help me because aparently I am "healthy young man". I'm 32. They are willing to let me die, if I actually get diagnosed after trying for so long I will probably kill myself over the way I've been treated.

I have severe symptoms. spitting blood hourly, night sweats, sore throat, pain swallowing, severe earache the cuts through 3 cocodamol, headache, etc. I have 2 of the 3 risk factors for head and mouth cancer in 15 pack smoking years and heavy alcoholism 1 year ago. I am consistently refused a 2ww referral due to my age. All of these symptoms with no sign of infection, no one can say what is wrong with me, but still no one helps. 

Last night the earache was so extreme, every minute or 2 sharp pains, this was after 2 cocodamol, so I had to take another, nothing, so I had to take another and that got rid of it. 4 codeine + paracetamol for a "healthy young man". Then ofcourse spitting up bright red blood in my sink.

I've tried for 7 weeks to get help. The NHS is just going to sit and let me die. What do I do?

  • Hello Noobert, 

    I am so sorry to hear all this has been happening to you and that you feel you have not been getting any help. After what happened last night, the extreme earache and the fact that the painkillers are not helping combined with you spitting up bright red blood in your sink, I think it would be best to go back to A&E and explain that you have had all these symptoms last night.  You can also ring 111 to get some advice during the weekend about what you should do but if you feel you need urgent attention, go to A&E or ring 999. It can be frustrating to feel like no one is helping but I am sure you will be in good hands soon and get all this properly investigated. 

    We're all there for you anytime you need to talk. If you feel desperate and want to talk to someone about the impact this is having on you psychologically  you can also ring the Samaritans helpline at any time on 116 123. 

    I know it's really hard but try and resist the temptation to look anything up online as this will only make you more anxious and make you fear or anticipate the worst. I am sure it won't be long now before they give you a definite diagnosis. There are helpful tips on this page to help you cope while waiting for important news. 

    I hope you are able to see or talk to someone today about these symptoms and that you will be looked after well and get some answers quickly. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

     

  • Thanks, yeah I've already looked up everything online so don't worry lol, plus my symptoms and pain are so severe right now that nothing is going to make me more anxious, I can already feel myself dying. I have done for weeks. I'll go back to A&E but they won't help me. Noone does. The NHS is happy to watch me die and there is absolutely nothing I can do about it. Thanks for listening anyway, will take the advice and give A&E shot anyways, if that doesn't work I don't expect I will be here tomorrow.

  • Oh no Noobert I am so sorry to hear this. I suggest you call 999 immediately if you feel you need urgent medical attention. I am sure they will look after you  - you just need to go and see someone now and insist that you really are not feeling well. 

    Keep us updated on how things go but please do ring 999 if you feel it's urgent and need help immediately.

    Lucie

  • Decided to wait for it to be less busy at A&E due to the heat, and called 111 as I heard it's possible that they can book you in for a time to go in which can drastically reduce your wait times (the hospital by me currently has the highest wait times for practically every department in the country, most cases 2 or 3 times larger than others), that was 4-5 hours ago. Im still waiting for them to call me back.

    kinda good thing is a found a lump in my neck so im going down first thing in the morning and guna see if I can get a CT scan, if not I'll request it from my GP on Monday as im sure now they can finally put me on a cancer pathway, I'll request it be Very Urgent (within 48 hours). 7 weeks ago I didn't have a sore throat, no 9 out of 10 severe earache, no facial numbness, i so imagine this lump is what's caused things to get that much worse. Isnt small either seems to be quite deep and long and causes severe earache when I touch it. Depending on the severity of the news I get I don't know what I'll do. I could likely have been saved if one of the GPs, or specialist I begged to help Me actually did just that... I thought I'd be happy thinking I could finally get a diagnosis but now I physically feel so bad that I'm very scared it's too late for me to even have a a year left on earth.

    I'm really sad but thanks for listening anyway

  • Early morning is a good time to go to A&E l collapsed in the hospital staff car park on my way into work at 06:45 one morning and when I was taken to A&E it was really quiet l was seen quickly, after being unwell in the reception area.  I hope they can help you if not your dr. 
    susie

  • Oh poor you Noobert I hope you will have heard back from 111 by now and that you manage to see someone at A&E. As Susie suggested, try and go to A&E  at quieter times and do talk to your doctor too on Monday - try and reach out to as many medical experts as possible until you get some definite answers. 

    Now you've found a lump on your neck, hopefully things will move quicker for you. I know it's really hard but try not to anticipate the worst as it could be so many things - what is important is that they find the root cause of your symptoms very soon and you can then get the treatment you need. 

    Keep strong - waiting for a diagnosis is a long and painful process sometimes but you are taking the right steps to find out what is going on and I am sure you will then be in capable hands and get better quickly. 

    We're thinking of you today and keeping everything crossed for you.

    Best wishes, 

    Lucie, Cancer Chat Moderator