Indeterminate lung nodules shrunk after CT scan, any1 else?

My partner (27 years old) was diagnosed with triple-negative breast cancer in April this year, with a T2 tumor and 1 lymph node involvement. The onc requested a CT scan, which showed multiple very small nodules on her lungs (less than 3mm). He said lots of people in the city we live in have them and it doesn't necessarily mean it's mets, but they wanted to keep an eye on them and do a follow-up scan in 3 months. They were classed as indeterminate in the meantime.

Since then, she's had 9 weeks of chemo (3 rounds), and a few weeks ago she had a follow-up MRI and CT scan. We were very nervous about the CT scan but hoping it would show that it wasn't lung mets.

When the onc called to give us the results, he said the MRI scan showed a 1.5cm reduction in the breast tumor (around 35% reduction), which he was happy with. He then said the CT scan showed a slight reduction in the lung nodules, but that "we're not convinced it's cancer". He said they're still indeterminate and they'll do another follow-up scan in 6-7 months (following her op) to check again. He also said he thinks the next result will still be indeterminate, and they'll then schedule one for 12 months after that. When we pushed to see if he thinks they're probably not cancer, he said "I want to be more grey than that" and said one oncologist who read the results was more concerned, but in the interdisciplinary meeting they were less concerned.

Initially, we were relieved, as "we're not convinced it cancer" sounded like a positive outcome. But now I'm driving myself crazy wondering what the chances are that it won't turn out to be lung mets in future scans. We obviously want to stay hopeful, but we're worried that the fact that they'd shrunk at all means the chances that they'll turn out to be benign are slim. 

I'm wondering if anyone here has been in a similar situation and had a positive outcome (i.e. indeterminate lung nodules detected, follow-up scan showed a slight reduction, but it eventually found out that their nodules were benign?).

  • Hello Matt_1,

    It is encouraging that the consultant said it may not be cancer in the lung nodules, but I can understand the worry you're feeling. I'm sure our members will share their experiences with you. As I'm sure you know, if anything changes or if you or your partner have any concerns you can contact the medical team. If you need any help with supporting your partner there is some information here, which I hope will be useful. If you need to talk to someone, our team of cancer nurses are available on the freephone 0808 800 4040. Lines are open Monday to Friday between 9am and 5pm.

    I hope this helps,

    Moderator Anastasia

  • Hi Matt,


    I'm sorry to hear about the tough situation you and your partner find yourselves in.

    I was in a similar situation. Diagnosed with Thyroid cancer, and CT scan picked up lung nodules (8-9mm). My doctor said basically the same as yours:

    - Probably not cancer

    - not absolutely sure though so classed intermediate

    - millions of people have lung nodules unrelated to any cancer 

    - scan again in 3 months 

     

    I had a follow up scan in 3 months which showed the nodules may have grown slightly. Still not sure so another CT in 3 months.

    Had the follow up in 3 months and nodules had "shrunk" (back to original size, the previous size increase was just a scan anomaly - apparently when nodules are mm across like mine, accurate measurement can be tricky).

    Follow up in 6 months and another CT and no change. 

    After this scan nodules were classified benign and I was discharged. This was about 3 years ago.

     

    At the time I did a lot of reading about lung nodules and they are rather common and obviously don't always indicate cancer spread. Obviously in your partners case, as she already has a primary cancer (like I did) they have to keep checking and be extremely sure to exclude the possibility of spread.

    It's hard but try to keep your mind off it and concentrate on dealing with the "known" cancer which by the sounds of it chemo is having an effect on which is great news!

     

    Hope my experience helps you a little in dealing with the unknown.

    Kettle