Waiting for colonoscopy

Hi,

I was diagnosed many years ago over 9/10 years ago with IBS.

Recently I have been losing weight (I did quit drinking 6 months ago, was a HEAVY drinker nearly an alcoholic atleast very well my way onto it due to stresses.

Anyway, I eat very rubbish food since giving up drinking so was very confused to find I was losing a heck of a lot of weight.

I don't excersize a lot due to depression so again, shouldn't be losing weight. So I didn't think much of it, I started getting very tired but again, depression and had a non malignant tumor in mouth so assumed it may just be down to that. I always have had bits of blood in my poo, but I didn't have loads. Around a month ago I noticed I had somehow the past six months to a year slipped into this void, my eyes closing without warning and being unable to stay awake at points, having no energy, my partner having to do everything, cleaning and what not has always been hes thing but slowly I couldn't even get myself dressed without his help, I have literally NO energy.

I started around six months ago having more and more blood when I go to the loo this time wasn't just on the toilet paper, it was going into the toilet itself.

I again just put it down to IBS, then around 3 months ago I started getting clots and clots and lots of blood coming out, I spoke to my Mum who said my Dad had IBS and always bled too so again put it down to that. I have a lump in my stomach, painful to press that came up around a year ago. Anyway, I sweat at night and allsorts. I recently started waking up with the WORST back pain, it almost feels like someone is laying on it. I get up and move its fine. 

I called the docs, She sent me a fit test, three days later I get a call to come in, so I do, she says my score is 400.

I had a cry she reassured me, 30 is to young but the news says otherwise, that Deborah James I think her name was was 35, so it can happen.

She has referred me urgently for a colonoscopy and I am heart broken, after years of the scares with the mouth tumors, I had the all clear from them around two weeks ago, it was the best moment of my life, it did not last. 

 

Anyone else had this sort of situation, and it not been cancer? 

  • Hi Chloe,

    Sorry for what you're going through. Your symptoms sound really hard to live with. It's sad that the best moment of your life didn't last long and I hope you can have a moment of relief again.

    I saw blood in my poo and I went to the GP and she gave me a FIT test and said 'this is a test that looks for blood in your poo'. So immediately I knew it will come positive.

    She called me a week later and said 'it did come positive but we already knew that so now it's time to do a process of eliminating what it could be' so she urgently referred me for a colonoscopy which I'm waiting for.

    I found out from my medical records that it was at 400 but I'm guessing she didn't think that was important so didn't tell me. 

    The reason I told you all that is just incase you don't know that test is just to look for blood in your poo as you already knew you were passing blood. I read that about 10% of people with a positive FIT result actually end up having bowel cancer.

    What happened to Deborah is so heartbreaking. She had the most beautiful type of strength to help others when she was going through such a horrific time. So many people have found out early that they have bowel cancer because of her increased awareness. 

    Hopefully we don't have bowel cancer but it's important to remember that we are on the wait for a colonoscopy and will have answers soon.

    I hope you feel better soon. xx