Hello Rachebabes and a big welcome to our forum, 

Your poor little one she has been unwell for a few months now and I hope they manage to get to the bottom of what is going on. It sounds like she has had lots of tests and that you still have no answers which must be disturbing for you. As your latest FC level results seem to be considerably higher, it might be worth just for peace of mind seeking a second opinion and talking to another doctor about this.

You can find out more about how to get a second opinion on this page.   

I hope you will hear from other members of our forum who have been through something similar before and that you get some clarity very soon as to what has been causing these symptoms. I hope your daughter feels better soon as it can't be easy for her to be in all this pain and experiencing these symptoms. I hope that they will find out what is causing this and that she is soon back to her old self. 

Best wishes, 

Lucie, Cancer Chat Moderator