Hi,

I can't really offer any advice unfortunately but I am in a similar position to you at the moment. Been having abdominal/pelvic pain for a few months and had bloods which discovered I had raised platelets and this has been the case for the past 2 months now.

I was being referred to heamotology on a 2WW but before I can do that I'm also having a transvaginal ultrasound and chest x ray next week along with more bloods. I don't know what your bloods were but as well as a FBC mine are checking bones, liver, iron and I've also had my CA125 check but that was normal. My GP didn't actually seem too worried and just wanted to recheck my bloods in a couple of months but I'm so anxious I pushed this but now I'm absolutely terrified. 

Would you mind me asking what your platelet levels were please? Mine were 535 and then 575 and I don't know if that is severely high or not? Everything you search just says anything over 450 is high but would really like to know how bad it actually is.

Really hope you're doing ok, I know how awful all this waiting and not knowing is xx

Hi and thanks for your reply. I'm sorry you are also going through this uncertainty, it's horrible waiting and not knowing. 

My bloods have been doing wierd things since February, like u I've had some pelvis pain but coz I have arthritis in my hips I've always put it down to that. My doc never seemed too concerned but did test my blood every 3-4 weeks for about 3 months before referring me in May. I waited about a month for an appointment and now got to wait again for another month to find anything out. I phoned my gp office to see if they could enlighten me about the blood tests taken by the hospital and any results, but they say they haven't had any results on the system yet.

As for my platelet count I believe it's been up and down, I can't remember all the results but I do know the lowest reading I got from the gp was 535 and the highest at 585 so it sounds like I'm in a similar ball park to yourself. The haematologist explained that while this was high, it wasn't considered dangerous so fingers crossed. I am pretty freaked out, I can't lie, but the consultant was calming and tried his best to talk me through everything, but the speed in which the ultrasounds are coming round as well as me being completely unprepared for finding out I needed a transvaginal procedure certainly hasn't eased my mind any. 

I sincerely hope you get the answers sooner rather than later and that they are positive. I wish you the best of luck. Feel free to send me a message if u want to talk more.

Take care Sam. 

It's all so scary isn't it and I know what you mean about the rush for the scan worrying you but at least it's less waiting time for you. It's good they are also doing a few different scans, I'm only having the one at the minute but actually would prefer for the others I think just to be sure everything has been checked. 
 

Thank you for sharing your blood results, it's good what you've been told about those levels not being dangerous and that's made me feel a slight bit better now too although I am still terrified. Dreading my next lot next week and just worrying about them going up even more.

Good luck with your scans and please let me know how you get on xx 

Just an update, had the scan done this morning.

First off that is an experience I'd rather not go through again. 1. It's embarrassing 2. they say it doesn't hurt, but it did actually, quite a bit and has left me sore all day.

The person doing the scan barely spoke to me except to tell me to turn, press here or strip, which wasn't particularly reassuring. At the end they just said the results would be sent to the person who ordered the tests, so presumably the haematologist.

So now it's just a waiting game till the 29th July when my next appointment with the haematologist is. I hate waiting, I really not a patient person at the best of times, but this sort of thing just drives me crazy. Everyone keeps telling me that if it is anything to worry about then I will probably get word to attend the consultant sooner, so I suppose no news is good news, but it's still not easy.

Anyway, @lou0912, have u had your scans/x-ray yet? Hope u are doing ok x

Ahh I'm so sorry you've had such a bad experience It's never nice going through something like this and when someone is not making you feel comfortable it's even worse. If I were you I would try and contact the hospital if you don't hear anything from your scans. That is probably a positive like you said but it might just help ease your mind a little rather than waiting until the end of July.

I've actually been for mine today too but I had quite a few internal scans during my pregnancy last year so I knew what to expect from it. It's not the most comfortable thing is it but mine wasn't actually too bad. The ladies scanning me couldn't tell me anything either but they were really lovely so it sounds like I've been quite lucky. 

I had my chest x-ray today too and again wasn't told anything so think I need to wait a about a week for both results.

I had another lot of bloods yesterday and unfortunately platelets still high, came down slightly to 550 so at least they're not going up I guess. Spoke to my GP earlier who is putting my referral in to the hospital on the 2 week wait so just got to wait for that appointment now and see what happens next.

The worrying this week has been awful though, I've lost 5lb since last Monday which I think (and hope) is just down to stress but again that's just made me worry more too. It's so scary knowing something is going on in your body and just not knowing what isn't it.

Let's hope we can both get some answers soon xxx 

I'm glad your experience was more positive than mine at least. I've never has that done before even in my pregnancies so I had no idea really and the woman didn't even warn me, just went straight for it, so yeah, wasn't fun.

I think I may try to contact the hospital in a week or so to see if they can tell me anything. Because my tests were ordered by the haematologist, my gp surgery don't really know anything unfortunately so I have no idea on the results of the bloods from last week so I don't know what my latest levels are.

I know what u mean about the worry and weight loss, I too have lost weight, about 3lb since Friday which I think is just stress. I've not had much of an appetite and been getting tension headaches which i haven't suffered for a long while. 

While I wish neither of us was going through this, I'm glad to have someone I can talk to who is in a similar situation if that makes sense. So thank you, I really hope for the best news for both of us. 

Haematology consultant at hospital just rang me. The ultrasound showed something on my ovary, so I've been referred to gynecologist and will be getting a letter for that soon. I asked about the bloods and he said as they are not all back yet he wants to wait till they are before saying anything so he doesn't say all is fine then another test comes back that isn't. So I've just got to keep my appointment with him on 29th July. 

Did they give you any indication on what it was that they've found? At least you've had some news though and hopefully you'll have an appointment through soon. How are you feeling about it?

It's a bit frustrating that they're keeping you waiting for your blood results but try and look at the positive and if there was anything major they wouldn't keep you waiting until the end of July xx 

No, all he said was something on my ovary and that the gyne clinic would explain more and that he had put it through as a 2ww appointment, so yeah a bit freaked by that as even my initial appointment with him wasn't a 2ww one, but not much I can do I guess, just more waiting and try to stay positive. 

I totally understand how you must be feeling, being put on a 2WW is scary. I just keep trying to tell myself that they have to be overly cautious and that's why they're doing it. Although I still question it about 100 times a day! 

On the positive side at least you will see someone quicker and be able to find out more information. Wishing you lots of luck, please keep me updated.

I'll let you know when my scan results come back xx