To give someone hope - Pancreas MRI

Hi Everyone,

This post is slightly different but i'm hoping it will ease the worry of someone out there, whilst waiting for an MRI.

My dad has a motorcycle accident a few weeks ago and broke his ribs. At hospital they did a CT scan of his body to check for any damage to his organs and they incidentally found the following which was detailed on his discharge notes (I have loosely translated the medical terms):

'incidental findings of slightly hypoattenuating (dark) heterogeneous (structure with dissimilar components) area of the pancreatic head with indeterminate splenic lesions and hepatic (liver) cystic lesions'

He was scheduled an MRI as an outpatient that same week. Whilst waiting for the resuts I googled  'heterogeneous hypoattentuating pancreas' and up comes that these are the key hallmarks of aggressive Pancreatic cancer (Adenocarcinoma).

As you can imagine, I have been in absolute pieces over this whilst we were waiting for over 3 weeks for the MRI results (he was made an appointment to come back to the hospital for the results, another worry!). I scoured the internet for anything else that it could be to put my mind at ease but time and time again, everything pointed to aggressive pancreatic cancer (with potential metastasis to the liver). When I found anything benign that was remotely similar to the CT findings, there was always a caveat of that particular benign lesion being extremely rare or something in the description that ruled it out in some way. I cried almost every day in anticipation of the results.

Today we received the results, all benign. The pancretic lesions were fat deposits, the splenic lesions were something to do with the blood vessel, and the liver lesions were just a collection of blood that apparently some people get for resons unknown.

I'm writing this because there must be so many people looking for reassurance online, and from personal experience, all you get is the opposite. I'm in no way exaggerating when I say that I was entirely convinced with a high level of certainty that we were about to get a diagnosis of Adenocarcinoma to the degree that I was researching clinical trials and top doctors in that field.

I also noticed that even on forums like this, so many times people are awaiting CT/MRI scans and looking for reassurance, only for them never to post again, and the outcome to never be known (likely because all was fine and they carried on with their life, which is great knews but doesn't leave much hope for others looking for reassurance on the same thing).

I guess I just wanted to let people know that no matter how bad it may seem, and no matter what google tells you with such certainty, it doesn't mean its true. My Dad is absolutely fine.

I hope for everyone that you receive good news, but even for those that don't there is always hope. My husband has been following his research long before this situation and truly believes in the work of Dr. Thomas Seyfried who has a book and many videos online which are worth looking at.

I wish you all nothing but health, love and happiness. Don't ever give up. 

x

  • Hello H2719 and a big welcome to Cancer Chat, 

    Thank you very much for taking the trouble to come here and for sharing your experience with us. It's very true what you say, that it is not often that we get to hear about the positive outcomes of those who are anxiously waiting for results so it's really nice of you to take the time to share your story with us. 

    You are spot on in what you say: we all find ourselves googling symptoms and one thing it seems to do to everyone is send us into panic and it's very rare that we are actually reassured after looking things up online. What happened to you, convincing yourself that it was indeed cancer, happens to a lot of people and I am so glad that it all turned out to be a false alarm. Your story just shows that it's best to try and resist the often irresisitible temptation to consult the unreliable Dr Google as this only makes us feel more anxious. I hope that others currently going through something similar will see your post and that it will inspire them to try and keep well away from the temptation to look things up online. It's always best to stick to reliable resources and to get in touch with doctors or medical experts and ask them questions if there is anything you don't understand. Discharge notes for example can be really hard to understand but a doctor will be best placed to tell you more about what they mean. 

    I am so glad your dad is fine - what a relief it must be for you! 

    Thank you very much for your lovely words to our forum members. I am sure they will appreciate them and will be inspired by your story. 

    Best wishes, 

    Lucie, Cancer Chat Moderator