Raised CA125

Last summer I had terrible pain in lower right side and bloating. Doctor called to say that CA125 level was slightly raised at 40. Urgent referral under two week rule and they found a small cyst and a fibroid. Another scan a few weeks later showed cyst had gone. Things settled but I've been having an ongoing pain in same area for a few weeks now. Had my tubes tied 3 years ago and my periods are horrendous, bad pain with them and heavy enough to need to use a tampon and a pad for first 2-3 days. I've been taking tranexamic acid and mefenamic acid for awhile now which does help. Doctor repeated CA125 test couple of weeks ago and called to say she was a little concerned that my level is currently 70. So on two week referral again. I'm trying not to worry too much as I know it's probably fibroid. Think it's the waiting and not knowing. I'm 45 and hope I'm not set with this recurring again and again. Anyone had similar?

  • Hello Abba25, 

    Poor you having to go through all this again! Try not to be overly concerned though as there are so many things that can explain raised CA125 levels. It's good that they are being thorough though and investigating this properly. As you say, it's the waiting and not knowing that is the worst thing and this period of uncertainty can be really hard as it makes you anticipate the worst. Try if you can to keep busy and distracted, keeping away from the temptation to look anything online as this will only exacerbate your anxiety. There is information on this page to help you cope while waiting for important news.

    I hope you will also hear from others here who have been through all this before and that they will be along soon to share their story with you. 

    Keeping everything crossed for you that everything turns out fine. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

     

  • Thank you Lucie. I finally got letter yesterday with scan date, 10 June. I'm just trying to keep busy and not sit and think about it all. My pain is moderate and I've had extreme bloating this week.

    Got everything crossed x