Have fun it's later than you think

Posted a bit of this in the 'Introduce yourself' part of the forum but as a quick recap...

Had a persistent cough, went to see the doc who suggested an X-Ray, and then a CT and now I have a PET scan in the next 2 weeks. Shadow on my right lung indicating....you know what. I never smoked. Meeting a McMillan nurse at my consultation, who has lovely, was the other big indicator of what is happening.

I was blown away initally but a bit better now after the inital shock. That said I may live longer than I think, don't know yet but right now there are so many thoughts going through my head. i guess the same ones everyone else has.

Thought I'd get another 15-20 years, I'm only 52 now.

I haven't told anyone and slightly wished I hadn't told my wife/mum that I am having a PET scan because if you google those it pretty much describes it as a cancer scan. Perhaps it'll be a way to gently break the news.

We've booked a holiday in 4 weeks and I will get confirmation before then. I'll keep the result to myself otherwise it won't be the best holiday. 

Planning for the future for anything at the moment seems a bit pointless but I have to keep acting is if i have one (and I may have one).

At this pointi ti s good to 'talk' on here as I can't talk to anyone else.

 

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  • You might have to watch the holiday part if you're going abroad, and it turns out to be worst case scenario.  Insurance companies can be fickle when it comes to certain conditions.

    I would read the detail about disclosing pre existing conditions before travelling. The biggest worry is, you need some sort of medical care when away, then find out your insurance company refuses to foot those bills. If you're remaining within the UK, then that's all irrelevant.

  • Hmm, yes, I didn't think of that.

  • Thanks RSB. I am, at the moment, unbothered by it all. I don't know if I am going to last 6 months or 26 years. Or get run over by a bus tomorrow! For me, I'm not letting it affect me and, as I feel 100%, I am carrying on as normal.

    It took a couple of weeks to get over the initial shock for me but since then I have been fine. However my wife is just into the second week of finding out and so I spend time reassuring her a lot. 

  • Sounds like a great strategy RossM and this forum is a fab place to unload.

    Sounds like your wife has been hit double time given her brother's skin issue, which doesn't make things easy!

  • Went in for my biopsy today (results next week). I was home by 11am! Amazing that they can scan you, go right into your lung, take samples and you’re home before lunch.

  • At least that's the biopsy over and done with, and 1 week isn't too much of a wait for the results either with all things considered, though small comfort I know. Will keep everything crossed for you - please let us know how things go.

  • So...firstly, went to see the consultants last week. I was slightly forgotten in the outpatients but they found a spare consultant to see me. I was slightly confident it wasn't bad news if they just were going to find a random consultant for me.

    However, I was expecting the worst and..... they said the biopsy was not showing any cancer and so it was probably a touch of pneumonia or something and I should take some antibiotics. they had sent my test off to another lab to double check though. So, fantastic news and a big relief for my wife.

    But...we came back from hols today to find a letter asking me to come in on Monday. It may be just to confirm all is ok but now we can't help wondering if it is something they found in the second lab....

  • Argh, firstly that's amazing news and it must have been such a relief for you, but then it probably feels like a never ending nightmare with the letter appearing when you got back. It must be so stressful. But I hope it at least enabled you to have a worry-free holiday and you had a nice time away... 

     

    Fingers crossed that on Monday it's just a case of them confirming the test results came back negative again, leaving you free to get on with your life. I don't know for sure but I get the impression they would call you back to confirm and discharge you either way(?) so perhaps pointless reading into why they want you to return.

     

    I'll be thinking of you on Monday! Please do continue to keep us updated.

  • Thanks Paul. Looking at the letter it says  'Clinician: lung Function Room' i wonder if it is just some lung function test...

    As you say, great news and then maybe not!

  • Hi RossM,

    Hoping you're OK. Just thought I'd check in - was it this Monday you went back in? Understand if you don't want to reply just yet or maybe you're busy, but wanted you to know I thought of you nonetheless.

  • Hi, yes, so I went in and just had to have a lung function test, just blowing into tubes, nothing else. I think it was just soemthing they wanted to do earlier but things just progressed faster on the scanning front.

    No idea of the result but the operator said it looked fine (but then they probably always say that).

    Ploughing through antibiotics at the moment...

  • Hi Ross,

    A bit of good news by the sound of it... And no, they don't always say "it looks fine"!

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