Vulva cancer suspected

Hello all

 

Im new and have never joined a forum in my life but I'm finding myself scrolling the internet for stories and advice and theres isnt much when it comes to vulva concerns. My symptoms started last year with persistent itching and burning in vulva with open sore developing. I saw my GP who was very matter of fact about her concerns re cancer and referred me to gynae. Unfortunately I had a poor experience at gynae who advised probably herpes and gave me treatment which was ineffective. I was due to have a follow up review but this constantly got delayed so I have now gone private and am due another consult tomorrow. Unfortunately, by chance the consultant I'm seeing privately tomorrow is also the same consultant who assessed me via NHS so I'm really nervous he's going to brush me off again. The burning and itch has been ongoing for over 7 months and is worsening. Ive now also developed two little pimple like lumps.

I'm looking for advice re other peoples inital symptoms and how they eventually got diagnosis. Ive tried several treaments including aciclivoir for suspected herpes and steroids for suspected lichen schlerosus - nothing helped.

Are we able to ask for a biopsy? 

 

Thanks in advance , any advice would be really appreciated

Parents
  • Hello Rhimarie and a warm welcome to Cancer Chat, 

    Poor you, your symptoms sound painful and I hope you can get these sorted very soon. I am sorry you had such a poor experience with the gynaecologist and that the treatment you were given was ineffective. How unfortunate though that your private appointment is with the same consultant you saw on the NHS when it would have been good to seek a second opinion about this. You can find out more about getting a second opinion on this page. You may have had your appointment though by now but if not, perhaps you could try and ask if you could see someone different and get a second opinion? 

    I hope you get a definite diagnosis soon and that you are finally given treatment that will help. Do talk to your consultant about the possibility of getting a biopsy I am sure they will be able to advise you further on this. 

    I will now let our other members who have had similar symptoms before come and share their experience with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

     

Reply
  • Hello Rhimarie and a warm welcome to Cancer Chat, 

    Poor you, your symptoms sound painful and I hope you can get these sorted very soon. I am sorry you had such a poor experience with the gynaecologist and that the treatment you were given was ineffective. How unfortunate though that your private appointment is with the same consultant you saw on the NHS when it would have been good to seek a second opinion about this. You can find out more about getting a second opinion on this page. You may have had your appointment though by now but if not, perhaps you could try and ask if you could see someone different and get a second opinion? 

    I hope you get a definite diagnosis soon and that you are finally given treatment that will help. Do talk to your consultant about the possibility of getting a biopsy I am sure they will be able to advise you further on this. 

    I will now let our other members who have had similar symptoms before come and share their experience with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

     

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