Hi everyone,
I've had a hell of an 18 months. So much has happened I'd be here all night writing. So very briefly, it started with a full hysterectomy, a 2nd operation 4 weeks later due to unexplained severe pain not related to surgery, 4 weeks of gastric covid 3 days after leaving hospital, a diagnosis of a rare autoimmune liver disease, a car accident, deaths of relatives and a friend and fast forward to now where I've been awaiting results from a lymph node biopsy for the past 3 weeks after 18 months of a nightmare getting here. Several lymph nodes have been found to be enlarged over the months, the biggest one at the base of my oesophagus now grown to 2.5cm x 1.5cm. One more on my pancreas and another near my liver. PET scan lit them all up plus more found in my armpit. So had to have a biopsy via EUS, heard nothing since. Saw my haematologist last week and he said he was going to chase the results.
I had a call last Tuesday from my gastro consultant's secretary saying my consultant had wanted me to be booked on to her clinic for the next day but that the clinic had now had to be cancelled so it would be this Wednesday instead. She said nothing more so I assume it's for my results. I also have an appointment with a haematology consultant on Friday. Not sure if one is a follow up of another or just 2 different appointments because no one is communicating.
I've not been told to take my husband with me, so I'm hoping this is good news? But then equally she has done all other follow ups via telephone whereas this is face to face.
I'm starting to go mad, the waiting is just horrendous! Is bad news given to someone on their own? Would they have told me to take someone?
