Neck biopsy

Hi looking for some advice I found a swollen lymph node on my neck a few months back I have been to several appointments most recent being Monday for a ultrasound and biopsy it all seems a blur. I asked when they where doing the ultrasound could they see anything ( seemed he was on my left side for a long time ) then carried out a biopsy on my thyroid and swollen lymph nodes he then asked me did I want him to be honest and he suspected it to be thyroid cancer and how not to Google and biopsy would be sent away in still in shock and I was not expecting to be told that before biopsy being anazilsied can they see from scans etc I wasn't prepared for it but I am glad he was honest also , I'm now thinking did I hear him right etc called today to check how long results would be to be told they are back from the secretary and ent consultant is on call all week she will highlight to him it's back , I have been a anxious mess waiting 

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  • I am going through exactly same thing at the moment.I was referered by my dentist for a lump under my ear.On my first hospital consultation with maxiofacial I was immediately sent for a ultrasound.I did that and they found two lumps.I was told the one I was sent in for was more like calcified tendon but the other needed more tests.A week later I had ct and then another ultrasound with biopsy.I have been told its on my thyroid and he has seen alot of benign lumps in his time and mine isn't that.Then said to prepare myself for the worst and started talking about operations and treatments to me I was due to go back for my results but unfortunately I can't atm as we have a overseas holiday we have planned for over two years.The wait for results is going to kill me but trying to stay positive.

  • Im so sorry your also going through this it's the waiting that's the worse that was a week today I had biopsy but he told me more or less he's pretty certain at the scan it's thyroid cancer have spoken to some users on here who have put me at ease that it can be removed and replacement hormone tablets so please try not worry ( should take my own advice lol ) did they also tell you this at a scan ? I didn't think was possible for them to tell us this until biopsy was back. The worst bit is mines is back Thursday and I still haven't been contacted I was sick with anxiety today looking at my phone all day so decided to call the secretary today all day it went to voicemail so I'm guessing she's off today really hoped I would of heard today too but I'm going to get back on the phone tommorow again hope you have a lovely trip and manage to switch off keep me updated with everything 

  • I don't mind in the least. And yup, that was basically the same situation I had. My recovery was...pretty uneventful, to be honest. The worst was that I was really sick from the anaesthetic for about 12 hours after surgery, but I was told to expect that because I get travel sick and apparently the two are caused by the same thing?

    I felt pretty OK the day after the operation and was walking around and stuff, but then the day after that, I was completely exhausted and spent most of the day sitting on the bed. I was in hospital for a week because I had an annoying drain thing that had to be removed, but I felt pretty OK, apart from like the stitches being uncomfortable if my collar rubbed off them or anything by about day four or five.

    If it's any indication, when I went back to the hospital to get my stitches out, I walked the 1.5km from the station to the hospital and went to do some shopping in the city centre afterwards.

    I went back to work a month almost to the day after the operation. 

    In my case at least, the radioiodine treatment was supposed to be about 2 months after the operation (it ended up being more than four, but that was because covid kicked in). Radioiodine treatment or iodine radiation treatment is less scary than it sounds. It's not scary at all, just annoying. The only thing that worried me about it was the possibility of having to come off my medication, but I think you mostly just get two injections before it instead of that now. So you get the two injections each of two days before, then you go in as an in-patient for a few days. The first day, you swallow a capsule and that...is basically that. It doesn't make you sick or anything. The only side effect I had from it was I got a nosebleed about ten days later!

    The main thing about it is that you are radioactive, so you have to be isolation for a few days, which in effect means you have to stay in hospital. You will likely have to arrange some time off work for this.

    Before the whole covid issue, I had planned to have it done during the Easter holidays and had a somewhat amusing/confusing for her conversation with my principal where I told her I was getting it done during the holidays but would need a day off beforehand for a preliminary appointment and might need a few days off afterwards, depending on what the medical team said. She said, "oh, is that to avoid infection?" and I replied "no, it's just 'cause I'll be radioactive and I'm not supposed to be around children and I'm not sure if that includes our 1st years." (1st years are 12/13 and some things I checked online said restrictions on being around under 14s.)

  • Aw yeah they said cause I have kids etc would need to stay in about being radioactive etc I have a big holiday for my 40th coming up end of June I'm not sure I will get she more or less said depending on calcium levels etc the same thing stupid me didn't take insurance at time of booking as thought would have plenty of time before this started happening . But this is important so comes first in seeing her on the 5th may she she had slots in may for surgery not sure date etc so it seems to be quick gettin organised x 

  • Unless the radioiodine treatment is immediately after the operation, your 40th should be fine. The worst case with calcium levels is that you will have to stay in hospital a few days while they get them regulated. I had a drop in calcium levels and was actually waiting hours for confirmation they were OK so I could go home my last day in hospital! It wouldn't take anything like two months.

    I would have been fine to travel a few weeks after my operation.

    The only thing would be the radioiodine. That could cause difficulty with travelling. They said they could arrange that to some extent at my convenience, which is why we agreed the Easter holidays, but of course, with covid and ye're system is more centralised and public, so not sure if that will make a difference.

    Would be worth mentioning the holiday to them and seeing if they could accommodate it. My surgeon said it should be done within the year of the operation.

  • Hello how are you gettin on ? I am currently waiting on surgery planned for 27th of this month total thyroid removal and Left side neck dissection and also a central neck dissection just thought I would pop on and see how you are keeping  x 

  • I had my news today.Not sure how I feel.The results are Inconclusive after two ultrasounds a ct and biopsy.Ent want to remove half my thyroid to be sure and some lymph nodes.Im so unsure what to do as if i do the op and its nothing I would have put myself through all that,but if I leave it I could be risking my health.The intend on operating beginning of june,im guessing its the only way to be certain.He said it lolks very likely by the ultrasound scan

  • Hello sorry to hear that news hope your ok  , if they are saying it looks likely its better to get it all done rather than worrying about it . I just can't wait to actually get in and get mine done now the waiting about is so long . I hope you managed to enjoy your holiday and relaxed a little 

    nicola 

  • Had a amazing holiday thanks hun.I definitely think I will go through with it,as its got bigger now 3.8cm and I can definitely feel it when swallowing.I really hope your surgery goes well keep me posted.

  • Yes I'm think your making a good decision it's better to be safe and get it done especially if it's annoying you also. I will do time seems to drag by hopefully it comes quick up for a pre op next week then a covid test then all set for the 27th keep me posted too 

  • I will do hunny,really hope it goes well.Have you gotta stay in overnight as well? They told me I have to I thought it was day surgery.They want my lymph nodes as well half of it out,guessing thats normal.Its awful still feel like I'm trapped in limbo

  • Hi yeah said I will wake up with 2 wee drains and to expect a few days mabye longer depends on calcium levels etc afterwards but the Said it's hard to say 

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