Which department do you think I should ring? Because I'm so confused by it all at the moment 

Thanks

Hey,

Another update I got in touch with the doctors secretary but had no reply, gp doesn't think they are going to get the results, so I'm back at the start where I have no answers really.

Abbie

Hi Abbie,

Maybe they are waiting to release the results after the lumbar puncture as it will be more conculsive. If it's any consolation I am waiting for biopsy results and I know who my consultant is - and I can't get my results either. It's not good xx

Yeah, maybe but I would like to know that, because I have to wait nearly a month for the lumbar puncture with no communication with anyone who knows why I'm having the procedure.

Abbie

Hi Abbie, 

There can be lots of reasons for a lumbar puncture, and you're right, they should let you know why they are doing it. I think it's time you got in touch with PALS again and tell them you will put in a formal complaint if noone can give you any information. I might need to contact them myself for my own predicament - my consultant is a locum and I don't know if he works full time or not or if he is even still in the job!

Hi,

Still haven't been able to get in touch with anybody. So don't know what to do at the minute.

Abbie

Hi Abbie,

Is your appointment for your lumbar puncture soon? They might not tell your results beforehand. Or perhaps you can ask when you are going in for the procedure why it needs to be done. There should be a contact number on the lumbar puncture appointment where you might be able to ask someone? I am lucky I do know who to contact - I have not been given my results yet as they are not all in. Perhaps they are unsure of something on the MRI and need to do this test before they can give you the results. On my MRI they couldn't tell what kind of growth I had, and that's why it was removed by an excisional biopsy. I still don't know what it was - but it's out! I've been told one of the 2 results is in - but they will not give me that until the 2nd (histology) result is in. I know that isn't any answer for you, but perhaps they don't want to tell you something that turns out to be wrong!

Another update there is absolutely no information on the appointment letter for the lumbar puncture, still don't know who to contact and it's been over two months since the mri, so just waiting and not knowing what else I can do.

Thanks

Abbie

Hi Abbie,

I'm sorry noone is telling you anything, all I can assume is that the images on the MRI is why you are having the lumbar puncture. You might be able to ask someone just before the procedure why it needs done but otherwise I don't really know what to say. I'm in a similar boat waiting for results, so I understand your frustration. It's not nice. Do you have long to wait to your lumbar puncture? I hope you get some answers soon x