Scared Ovarian Diagnosis

Hi, I'm new here and petrified. I haven't had a cancer diagnosis yet so you may think I shouldn't be hear but I'm petrified. I've had bloating for about 4 weeks and after routing blood test an elevated CA125 of over 300. I'm so swollen round my middle and now think it could be ascites not bloating and I feel so stupid and worried that might be a sign I have more advanced cancer. I've got an appt on Monday morning with a gynaecologist. I have a 5 year old and can't even think about what this may mean. Anyone who has been through this or has any advice welcome. Thank you x

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  • Hi-I have also just recently been told the devastating news after my blood results came back as high.. I had an mri/ ct scan pretty much straight away where they found a tumour on my left ovary also bowel and adrenal problems.. I'm so sorry.. please don't worry.. I know it's very difficult... and scary... I'm here if you need to chat..xx

  • I saw the consultant yesterday who asked for urgent CT and MRI scan. I am beyond petrified as I keep reading about ascites (I have a swollen tummy and she said she could see fluid around the pelvis). Did you have the swelling? What are your next steps. I've got a two week wait for results and not sure how I will get through it. I'm not sleeping, crying, worrying about other symptoms I seem to have developed. If it was only the high reading I think I would be less concerned but I'm worried the ascites is a sign I have advanced cancer.

  • Hi , 

     

    How did you have your hysterectomy  if you don't mind me asking? 

    I'm waiting for my total on the 24th vertical cut . 

    My cyst measured 17 x 11 x 11 cm the last time it was scanned . I'm hoping recovery from the op is ok x x 

  • Hi ladies, my recovery from the Op has gone well, I'm still taking it easy but doing more each day and off painkillers.  I also had the best news tonight, my consultant rang to say my 'lump' was a benign ovarian fibroma caused by Meigs syndrome. It's very rare and unique and I feel so so lucky as appreciate that many other people with my symptoms have a very different diagnosis. It has been such an emotional nightmare and I know you ladies appreciate that. I have learnt things I did not know on this journey so intend to pay back the kindness I have received by raising awareness of symptoms of ovarian cancer and might even do a 10k for charity x

  • The best news congratulations

  • What fantastic news I'm so pleased for you xx

  • Hi ladies how are you all doing? I've been thinking of you all today x

  • Hi I've had my surgery today. 

    It couldn't of gone any better. I have had a lot of things removed and have a permanent stoma but they got it all and I'm now cancer free which is amazing considering it had spread from my ovaries. 

    I just can't believe it and the awful surgery is all worth it. Some precautionary chemo to come but it has been successful which to be honest what not what I was expecting

  • oh Tink, I'm so pleased it went well. How are you feeling after the Op? Make sure you continue to take it easy, I feel like maybe I should have rested a bit more. X

  • How are you all doing? You are all often in my thoughts.

  • Hi, 

    Spent the first 2 weeks in hospital as had an infection but I've been home now just over a week. 

    Can't believe how tired and little energy I've had but am improving everyday. An afternoon nap is something I've never done but does really help and I feel so much better for it. At a stage where I can have a little trip away from the house for an hour or so and it feels like normality. 

    I see my consultant next week for the histology report and to find out when chemo starts. I am just relieved that it was all removed and in six months this part should hopefully all be behind me.

    Thank you for the kind thoughts xx

  • I'm also home from hospital, only four days in critical care and one day general gynae ward.  Mostly going ok but having an issue with my liver which is being monitored via GP practice.  Staples out today, so another milestone reached.

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