Hi,

Think the feeling I have is numbness.

I have my husband and some wonderful friends who are in the know and I couldn't get through this without them. I have given a very watered down version to my children for now 

The stoma if required could be temporary. The plan is to dissect and reattach and if cannot a stoma would be fitted temporarily unless they had to remove more bowl than intended.

Thank you for sharing about your daughter, it is reassuring x

I know my scan results are back but my consultant was in theatre all day today so was unable to review them.  I was really hoping to hear before the long weekend but it wasn't to be.

Take time for yourself, speak to whoever you feel you want to. Have a damn good cry, whatever helps you deal and get through the next few weeks xx

Oh Tink, I'm sorry it wasn't the news you wanted but it sounds like they have a plan for you. I've read quite a bit on debulking and from other forums I have read that they can decide during surgery that  a stoma is not required or as you say reverse it. As well as being on here I have also been in a site called 'Ovacome' there are some lovely ladies on there advising each other. 
 

I also got called in today by my consultant and got some more positive news that I had hoped. As you know I had gross ascites which because I had googled to death had convinced myself I was stage 4 due to it spreading. The biopsy of the ascites fluid and my omentum have come back as not malignant. I still have a mass on my ovary which will need major surgery but the consultant said she was relieved for me as was worried. The results will be seen by an MDT team after Easter to determine next steps and I may end up seeing a gynae oncologist before surgery but it's better than I could have ever hoped. (Who'd have thought having major surgery would be a happy result!). I still don't really understand what is causing the fluid but I suspect I may not know that until a biopsy from what they remove.

This whole thing is such a roller coaster of emotions though and really makes you think that life is for living. I feel for anyone going through this xxx
 

i

Thanks Just-mum, I think compared to what it could have been it was great. I don't think I'm totally out of the woods but I can see some light through the trees for the first time in weeks. Yep I'm on the other site too, everyone is so kind and supportive of each other. One lady said she had put some info on Instagram that I could look at. When I took a look I found out she was the owner of a coffee shop in the town where my parents live so I messaged her and she spent ages telling me her story and answering questions for me. My husband has not been happy with how much I have looked into everything online but I'm the type of person who wants to know and seeing the support and options has helped a little. 

Hi AC,

I know what you mean about looking into everything!!  I went back to college when I hit 40 as I wanted to train as a midwife.  Got my A levels and accepted into uni, but other things in life got in the way and I never made it, but womens health and gynae has always been an interest, so I've been falling down the research paper rabbit hole the the BMJ and other such sites, it drives my youngest nuts, but it reassures me which is important.  I was interested to read about an article in last weeks Sunday paper about a possible protein which could help in diagnostic blood tests.  My mum reads the paper so I asked her to save the article for me, her and dad obviously read it through and I think she focused on the survival statistics rather than the rest of the article, she sounded almost angry that I wanted to read it and I think she was tempted to throw it away so I googled the article anyway just in case.  It's all a matter of perspective and what you're able to filter out as useful against what is scary and maybe harmful.

Have a great weekend xx

Im so sorry to hear your news Tink, im glad you have a great support system around you and wish you all the best, sending hugs xx

Well, my letter arrived inviting me to a follow up appointment on 10th May.  

Well this is unexpected.  This morning I had a call from a research nurse at the hospital asking if I would be happy to be part of a study trying to identify ways of screening for early ovarian cancer.  She was then rather quick to insist that she wasn't telling me that I have cancer as I've not seen the consultant yet and my appointment is still three weeks away, just that they would like me to be involved.  She is sending more info by post, will call again next week, and will meet up with me in clinic when I go to see the consultant.

I have every intention of saying "yes" but I did chuckle when I put the phone down.

Oh dear, that would have terrified me.  Im still waiting on my ct scan results been 2 weeks, hoping they come through soon as im sick of this pain i have just feel sick and bloated all the time