I used private healthcare through work but I don't think even that has helped speed things along. The consultant said something about going into the two week cycle. Hope you get the results soon. 

Hi Just-Mum

I'm in the south west. Apart from the first scan all my appointments have not been via letter. I've had a phone call from the hospital asking me to come along on the same day or making an appointment for the next day x

How is everyone doing? I had an eventful week with a trip to hospital due to the fluid around my abdomen, I was released but have to go back if any deterioration in breathing or further increased heart rate. Still no results though, have that to look forward to one Monday xx

Hi- im in the northwest area ... xx

How is everyone? I have my results tomorrow and I'm struggling. I can't get out my head that I might have this horrible disease that will prevent me seeing my daughter grow up. My ascites is crippling me too x

Hi AcW,

No results for me yet, but I have a CT scan booked for 7th April.  I've struggled a bit this week, but I'm trying not to focus too much on it, which is really hard, but it won't change how long I still have to wait or what the results will be.  I worry more about the procedure than the results, cos I can't change them in any case.  I'm just dealing with one day at a time as best I can.

See if you can find some relaxation techniques that you can practice if you think that will help.  I know we're all different and cope with things differently but I hope you can find something that works for you.

Take care.

Hi AcW, I've been thinking about you all day.  How did it go yesterday?

Ahh thank you for thinking of me. I have a mass on my left ovary and swelling and a large amount of ascites. I have been referred now for drainage of the ascites and a biopsy of my omentum which is happening on Thursday (after a lot of chasing today and a lost referral!). I'll be glad to lose this fluid as an so uncomfortable. The doctor mentioned a major operation but wouldn't really say much else until these next tests. My husband and I are at different ends of the worry spectrum with him acting like it will all be ok and is probably a fibroid and me thinking I'll be lucky to see Christmas. I know I am thinking the worst but when you feel ill and uncomfortable it's quite difficult not to. I am definitely struggling but not really sure what help there is during these unknown stages. My parents have been away and know nothing of what has been happening (it was their 50th wedding anniversary and after lockdowns and my dad having a bout of pheumonia I wanted them to enjoy two weeks in the sun). I think having them back will help me although worried about worrying them! (I get my worry scale from my dad!).

how is everyone else?  Xx

Hi Ladies,

I've also been wondering how Tink is getting on.

 I'm still at the waiting for tests stage.  As already mentioned, blood tests are back, zero markers for bowel cancer, CA125 reading was 83 which, although elevated, when you hear of some results being in the 1000's, it doesn't seem too bad.  My ovary is reading about 10cm. I'm still getting some bleeding, but not a huge amount, which was why I pushed for a referral in the first place as I'm about 9 years post menopause. CT scan is booked for 7th April and then I suppose it's another waiting game while the results are reviewed.

Can I ask, has anyone considered asking to be tested for the faulty BRCA? gene if cancer is diagnosed? My daughter has asked that I request a test so that she at least knows if this is a fluke or if she is at greater risk herself.

Sending positive thoughts to you all.

JM