Abnormal FIT test - anxiety through the roof

Hi there, I'm Jane and yesterday (Friday) I received the results of a FIT test i did on Tuesday.  I had already had a text from my GPs saying theyd made an appointment for me at 2.10 so I knew with apprehension it was to discuss the results of this test.  When i got the results through on my NHS app, the wording was so frightening: "abnormal, patient is at high risk, must be referred urgently". The count was ridiculously high - 162.3 when i believe anything over 10 is considered "abnormal". I went into a full blown panic attack - uncontrollable shaking, palpitations etc and still had to wait a couple of hours to speak to the GP over the phone.  The results were even more of a shock as I'd only done one of the tests sent out by the national BC screening programme a couple of weeks earlier and that came back as "negative - no further action required" - how can there be such a disparity between the 2 results??

The doctor tried to reassure me by saying it doesn't necessarily mean i have cancer, and the blood could be due to haemorroids (which i do have) or polyps.  He tried to tell me that the test is either "negative" or "high risk, urgent referral" and there's no in betweens but i'm not sure i believe this.  I now have to wait up to 2 weeks to be seen and i'm not sure how i'm going to get through this time tbh (I'm 60 btw).

I'd welcome comments from others who are/have been in a similar position, or any other relevent experience x

Parents
  • My colonoscopy showed ovarian cysts ! No bowel problems l had no idea l had them l ended up on the gynaecology oncology list they have been removed recently and fortunately are benign. Bigger surgery than expected due to multiple adhesions fortunately my oncology surgeon spent hours removing them everything was stuck down. I know you are not female but there are other reasons for bowel bleeding than cancer. The drs referral is a fail safe no one wants to miss a positive problem, l think it's good as you are bumped up the list and screened quickly they used to leave you listed for ages. 
    l hope you have a good outcome like mine take care and try not to google as it just makes you think that you have everything. 
    susie

     

  • Hi [@Alfieisastar]‍ , thanks for your reply. Actually I am female (ended up with a weird username as after several unsuccessful attempts with Jane I opted to use my business name - surprisingly it wasn't already taken lol). I suffer from chronic anxiety and just over a year ago I was convinced I had ovarian cancer, managed to get a face to face at the dr (had to push for this due to pandemic). I had an examination and a blood test and they weren't worried enough to refer me. Any "symptoms" I had now seem to have gone. As regards now, the fit test result has been a huge shock and knocked me for six. I'm clinging on to the hope it's due to my piles, which I've had for years but tbh my mind is racing. A normal blood test result tomorrow would be a positive, but I'm not even confident about that anymore. I'm going to try and see my doctor again this week as I have so many unanswered questions. So glad your outcome was good, if unexpected. Take care x

Reply
  • Hi [@Alfieisastar]‍ , thanks for your reply. Actually I am female (ended up with a weird username as after several unsuccessful attempts with Jane I opted to use my business name - surprisingly it wasn't already taken lol). I suffer from chronic anxiety and just over a year ago I was convinced I had ovarian cancer, managed to get a face to face at the dr (had to push for this due to pandemic). I had an examination and a blood test and they weren't worried enough to refer me. Any "symptoms" I had now seem to have gone. As regards now, the fit test result has been a huge shock and knocked me for six. I'm clinging on to the hope it's due to my piles, which I've had for years but tbh my mind is racing. A normal blood test result tomorrow would be a positive, but I'm not even confident about that anymore. I'm going to try and see my doctor again this week as I have so many unanswered questions. So glad your outcome was good, if unexpected. Take care x

Children
  • My ovarian cysts sat there quietly with just a sore area on the left side of the abdomen. My g.p. Only sent me for a colonoscopy as l had loose stools and tummy aches l lost some weight it had gone on for 3 weeks. They are very quick to refer for? Bowel problems ! Without the scans they would still be there growing larger. I would push for an appointment l know they are not keen on seeing anyone unless they need an examination, l saw a young GP last week as l have breast pain again she couldn't get me out of the surgery quickly enough wouldn't talk about anything not even hope everything goes well at the breast clinic in two weeks. I'm trying to contact my usual DR but she is off sick 2 Appointments have been cancelled now7/8 weeks since l made the first appointment! The other DRs just say wait for the appointment to discuss your issues even though they say make an appointment with a Dr. Sorry to moan but l understand how difficult it is to get seen by a DR. 
    Have another go this week or make a routine appointment with a dr you prefer it's likely that that will be for 3 weeks time. Then ring again in the week and ask to speak with a triage DR say can't get appointment this week. 
    take care Susie 

  • Hi [@Alfieisastar]‍ , yes it can be so frustrating can't it? I'm currently waiting on a colonoscopy which should happen within the next fortnight or so as a result of the positive fit test and this is what's consuming me at the moment. The ovarian thing was November 2020 and I can say the "symptoms" I felt at that time (mainly needing to wee frequently and then difficulty emptying my bladder) are no longer an issue. I am a long term chronic health anxiety sufferer so I guess that doesn't help lol. I'm going to get a blood test today and a normal result would be a slight boost to me at this time. I just want to fast forward to my colonoscopy (and yet I don't, if you see what I mean?). All will be revealed I guess.

    wishing you well and hoping you get a satisfactory outcome soon with your GP xx