Hello everyone,
I had urgent repeat MRI head scans earlier this week on Tuesday afternoon. Took a couple of hrs in the machine. First thing Wednesday morning my neurologist secretary rang to say that in the next day I should be prepared for a phone call from my neurologist to discuss MRI results.
I have waited the last couple of days for a phone call that hasn't come. I have called and emailed the office but no response.
I do feel that my neurologist is avoiding telling me the results especially after the previous mix up and delay that saw her noticing a problem with my MRi head seven months after my first scan and then giving me these urgent MRIs.
She hasnt spoken to me, the only way I found out why I had these urgent mri head scans was via my rheumatologist. An active haemorrhage seen on my previous MRI with a lesion of some form.
I don't know what to do anymore. I have little faith in my neurologist and I'm getting no help, and I doubt I will get any call over the weekend either.
Each severe headache or seizure episode or blackout, I wonder what is going to happen, do i just carry on dealing with this at home, or when should I go to a and e, is it another haemorrhage how will I know?
Likely the rapid MRI results I should be getting are probably bad. It's unlikely to be okay after the previous MRI scan surely and the response from the secretary, and even the MRI professionals who asked me to be careful, and kept stopping the MRI for seizures I didn't even realise were happening.
I just believe my neurologist is going to delay telling me, for fear I shall launch a complaint. But I would rather just know, and deal with the present issues now.
I have exhausted all the avenues of contacting my neurologist so I am at a complete loss.
?what can I do??