I'm in a similar situation with my 3 year old daughter. 
She woke up quite poorly 4 weeks ago, very sleepy, sick and high temp. 111 told us to go to a&e so we did and they took bloods which showed a very elevated WBC of 30,000 and low haemoglobin. They gave us antibiotics as they thought she had an infection and to repeat bloods in 3 weeks.

in the mean time I noticed she has quite a few lumps on the left side of her neck and behind her right ear. One of them on her neck feels quite big.

took her back to Gp cause I'm so worried about the lumps like you I can't function for thinking the worst. The GP won't refer her for a scan so I've booked a private scan for this Wednesday cause I can't go on like this.

What did they say about the englared glands in your daughters neck? What was raised on her bloods was it the Lymphocytes? My daughters was very high neutrophils and low lymphocytes 
 

Thinking of you and here if you'd like to chat I know how horrible this worry is xx

Hi,

Thanks for your reply and I'm so sorry you're going through this. I understand how you feel, I feel like I cannot even function let alone eat or anything else!! Such a worry!

It was her lymphocytes that we're raised in her bloods and significantly so! And then got even higher with her second set of bloods. She had a scan on her neck and they confirmed they were enlarged lymph nodes and by themselves wouldnt be worrying but paired with the bloods they need further investigation. We were still awaiting het referral to peads.

I was told after just one blood test there's not much they can do, but as soon as you have the repeat in 2-3 weeks, if that is still not right, they will then look into it more and refer for scans etc.

We have actually just gotten home from the hospital. This morning she started shaking and projectile vomiting, she's refused food and drink for the last 3 days and hadn't urinated in 16 hours, wasn't interested in playing and had been extremely sleepy.

We saw a consultant who has just sent us home with antibiotics and said she's probably got a viral infection, I'm so angry and confused as she's been unwell for weeks and weeks and my instincts are telling me it's more than just a viral infection! They said at the minute her lymph count isn't high enough for them to worry right now, however they want to keep an eye on her and do her bloods again in 3 weeks to check they're coming down!

i just feel so lost and like no ones listening to me! 

So sorry you are feeling like this and going through it.

I feel the same, I've hardly been eating for weeks, I'm not interested in doing anything it's horrible.

That's how my daughter was a few weeks ago, shaky, temp of 40, projectile sick, seemed like she wasn't on this planet just wanted to sleep and we had the same outcome - antibiotics for a "viral" infection!

I know exactly how you feel about not feeling listened to, I literally just want to scream at the Dr's! We know our child more than anyone and know when something isn't right!