Hello LJ1608

I'm sorry to hear that you've had some ongoing health concerns with lumps over the past few months. you've done exactly the right thing in seeing your GP about these and it's good to know that they have started investigations with blood tests and an ultrasound. 

As I'm sure you've seen, people's experiences really do vary quite considerably. Hopefully, you won't have to wait too long for the results of the ultrasound and you will be given some reassurance. 

In the meantime try and stay as positive as you can and let us know how you get on. 

Best wishes, 
Jenn
Cancer Chat moderator 

Hi there

I had similar...lumps in neck thought to be lymph nodes and one that wasn't. That turned out to be a saliva gland

Anyway my doctor also wasn't very concerned and said I'd be referred to ENT. After two months of hearing nothing I rang the surgery to ask when the ENT appt might come through. I was told that due to covid it could be up to two years.

I decided I didn't want to wait that long so went private

I saw someone the following week and then had ultra sound scan and biospy of the largest lump within a couple of days

I have now also had a PETCT scan.

Thank god i went private

I've now been told I have follicular lymnphoma and start chemo next week

Ive been referred back to the NHS as now they know what it is the private route would now be no quicker

So, my advice is if you can affrod a few hunderd quid to get seen by a consulatnt privately DO IT
don't wait around. Get the diagnosis then go back through the usual channel

Im not writing this to scare you but to help you appreciate how imprtant it is to get a speedy diagnosis. I could still have been waiting just to see someone or to get results. Results with the private sector are back in a matter of a couple of days.

It also means you are freeing up an appointment slot for someone who isn't lucky enough to go that route.

If that is you then please keep pestering them for scan results and biopsy as quickly as you can.

My lymphoma showed itself in my neck and saliva gland, but it has been found to already be well established in my spleen and bones. I had no idea, no symptoms, no pain, I'm in the gym five days a week and would never have guessed this outcome.

Any one out there got a positive message about getting to remission in similar circumstances please share!!!

Hi mumminz,

Thank you so much for your response. I'm so sorry to hear about your diagnosis and am wish you all the best for starting chemo this week, will be keeping you in my thoughts

Unfortunately going private isn't an option for me however I'm just glad I managed to get an ultrasound booked in for so soon! I think I'm definitely going to try and push for a biopsy as well as the lumps seem to be getting bigger and more are also popping up. I've also noticed I'm getting out of breath a lot easier and quicker although this could just be anxiety! Either way definitely just want to put my mind at ease as best I can, trying to keep myself busy until my scan!

All the best x