Acral melanoma anxieties (waiting for biopsy results)

Hi everyone. I spent some time reading the posts here over the last week or two and it's been super helpful. I wanted to add my story because I'm suffering with a lot of the same anxieties many of you are, or were. 
 

I found a flat lesion on the bottom of my foot about a month ago and just thought I had stepped on something. A month later it was still there so I went to my dermatologist immediately. 
 

she looked at it in her dermascope and said, "I'm going to be honest with you, this doesn't follow the [benign] pattern that it should."  Ok, I knew this. I'm familiar with furrow vs ridge patterns.  She asked to do a biopsy, I said please do. 
 

I asked her why not just remove the entire thing. She said she "isn't convinced it's cancer" and thus wants to take the least invasive approach. But this is precisely where my anxiety has taken root: Acral melanoma is very rare, as in 1-2 people out of 1 million would present with it.  So how could she say she isn't convinced when she, and most other doctors, have likely never even seen this type of cancer in their career.  So it's no wonder she isn't convinced, she's not familiar with this. 
 

My dad died of cancer (a different type) a few years ago, i was only 28. I don't want to go through this, the hospital visits, the constant tests. I've just had a really traumatic break up that I've been recovering from and finally felt good enough to start rebuilding my life -- I just got a new puppy ..... and now this. 
 

I barely sleep, I try to force myself to stay awake because I feel like the bad news will come while I'm asleep, but I do that until my body is so tired I pass out. Then I wake up terrified to check my phone because I just know the call is coming to diagnose me, so I don't look. 
 

It sounds funny, a bit, as I write this, like it's fake. But then I remember I have a hole in my foot and can't even walk on it from the shave biopsy they did.. to check for cancer. 
 

im tired.   
 

thanks for listening. 

  • Hello sleepless-in-suburbia, 

    Welcome to Cancer Chat! I am pleased to hear that you have found reading the posts on here very helpful and it's true that many members of our forum will relate to these feelings of anxiety you have been experiencing yourself. You took the right steps (though no doubt painful steps!) in getting that lesion on your foot looked at by a dermatologist and rest assured that as they are experts in the field, you will be well looked after and you will get a definite diagnosis soon. The biopsy is an excellent diagnostic test and I can understand why they would not want to take an invasive approach until you receive the biopsy results. 

    You've been through rather traumatic events recently - your father's death to cancer will have no doubt left a deep mark and going through a painful break up is really difficult too. Try not to anticipate the worst though and don't forget also how rare acral melanoma is. All you can do for now really is wait for these important results which is by no means an easy thing. It's best to stay away from Google which I know is really hard especially with all the pictures of melanomas you can find online, but looking things up will only exacerbate your anxiety and won't provide any useful answers.  Focus on rebuilding your life especially after this traumatic break-up and spend time playing and getting cuddles with your new puppy, anything that can distract you while you are waiting to find out more. There are helpful tips on this page on how to cope while waiting for important news. I hope you won't have to wait too long for definite answers. 

    I hope that you will hear from other members of our forum who have been in a similar place before and that they will come and share their story with you. 

    I am keeping everything tightly crossed for you that it all turns out to be nothing concerning!

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Thank you for your kind and thoughtful reply. It helped greatly for a few days, I tried to avoid thinking about it too much as a mindfulness practice but the anxiety eventually took over again. 
     

    I tried to go to therapy for my medical anxiety in the past but it didn't work out well. 
     

    I think I do catastrophize a lot and am quite fatalistic but I also feel it's for good reason.  I remember my dads cancer battle and everyone tried to be positive but it was futile, none of it was positive. It was always bad news and constant trips to the hospital or having to call the ambulance. 
     

    my friend had thyroid cancer in her early 20s and it was gone for many years, now it came back and they found it in her brain.  
     

    it's always bad. I don't think my negativity is irrational, but at the same time it's a poor place to let your mind exist 

     

    I went to a private dermatologist, I was told up to 14 days for the results, usually sooner if it's bad. I'm on day 10.  I can't believe I made it 10 days.  Last Monday I was certain they'd call because I was certain it was cancer.  Tomorrow is the Monday after and I haven't heard a peep. Maybe tomorrow I will, but I was wrong last week so I could be wrong again. 
     

    part of me thinks in 4 days I'll be told I have cancer.  And if Im so unlucky as to have one of the rarest forms of it, then of course I'd be so unlucky that it has spread to my lymph nodes and eventually beyond. 
     

    if the 4 days pass and I still haven't been told it's cancer, I won't think it's benign  - I'll just think it's taking long because they have to discuss my situation more in-depth due to its rarity  

     

    1-2 people per million get Acral melanoma. Of course it's me. I should play the lotto 

     

  • Hello my name is Nancy I am also in your position mine was  found on my index finger my dermatologist said it was 2mm but not sinister I had the mole removed and waiting for results good luck

  • Hi There, 

     

    I have just come across your post and am currently going through the same worries. I had my biopsy 3 weeks ago and am booked in next thurs for the FU and results. I have been worrying about this for 2 months, not sleeping through the night due to waking up worry its cancer!

    May I ask how you got on? 

    Thanks

    M

  • Hi M,

    I noticed you were hoping to get an update form sleepless-in-surburbia so I just wanted to let you know they haven't been back on the forum in almost a year so there's a chance you may not find out how they got on.

    I really hope that won't be the case but if you don't receive a reply from them, then you're very welcome to reach out to others on more active discussions about this topic, or you can start you own.

    We're thinking of you M and wishing you all the best with your FU and results next week.

    Kind regards,

    Steph, Cancer Chat Moderator