Lymph Nodes Raised and Shoulder Pain

Hi all

I've posted a few times but just need some more advice! I've recently had a lot of health issues and still have no diagnosis... I saw a private Immunologist who thinks I have a rare immune disorder but still awaiting an NHS appointment with Immunology to have this confirmed. 
Anyway, recently I've been poorly with diarrhoea, bloating and ascites - since October ive had a colonoscopy (clear), chest X-ray (clear), 2x Abdo and Pelvic Ultrasound (clear other than ascites), CT Liver and Abdo (clear other than ascites) and a fluid aspiration and cytology of the ascites (no malignant cells, just a high level of eosinophils which has led to the suspicion of an immune disorder). During all this they were worried that I could have leukaemia or ovarian cancer - I have now been discharged from the Gynae oncologist and I'm seeing the Haematologist next week for a second appointment but he was confident my bloods were reactive (they have improved massively, CRP is now in range after 5 months). 
That's a backstory - the reason I'm posting... 

5 weeks ago I caught Covid - I had a pretty mild case but I noticed 3 enlarged cervical lymph nodes on my right side. They are about 1cm each and movable but they haven't gone down in size at all. I've spoke to the GP twice who doesn't seem concerned and said it can take a long time for them to go down and they would be more concerned about one large node, plus with all the tests I've had recently she said things wouldn't be getting better. Anyway, my right shoulder has been sore now for about a week - I don't know if it's my anxiety, the fact I have a 7 month old who is now 20lb so I'm straining or I'm constantly feeling the swollen lymph nodes so causing more shoulder strain. Should I be worried? I'm going to ring the GP again tomorrow and also mention them at my haematology appointment on 7th Feb but after being told for 4 months I could have cancer of varying degrees and then being told now I haven't, I'm so paranoid and struggle to trust any medical professionals. Are my lymph nodes Covid related, should they still be there after 5 weeks, should I not worry because they haven't grown? Or should I push for an ultrasound scan? Also, is the doctor right; would they have seen something by now after all my tests? 
 

As you can see, I have severe health anxiety as a result of the way I've been treated recently and my trust in anyone is pretty low... please someone tell me I'm being stupid? 

  • I'm sorry about the raised lymph nodes you've noticed and for the worry they are causing Charlotte.

    Many of our members have contended with similar symptoms so hopefully you will receive some support and advice from them soon but I do hope you managed to get in touch with your GP again since you made this post and are feeling a bit less anxious.

    If that isn't the case and you'd like to talk things through with one of our nurses, you can give them a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    There are some very handy tips and advice on the NHS Every Mind Matters website that may help you manage your anxiety as well.

    In the meantime, we'll have our fingers crossed your lymph nodes go down on their own and are no cause for concern.

    All the best,

    Steph, Cancer Chat Moderator