Cancer Research UK main site

I'm terrified

H0W1COP3
Offline

Hi. I'm new here so I apologise if I post something incorrectly.

 

Basically around 5th November 2021 , I urinated blood. I had a CT scan of my bladder and kidneys to check for tumors etc on 11th November 2021.

 

I hadn't heard anything so I hoped that everything was ok but I knew that I had to chase it up to make sure so finally built up the courage to call yesterday.

So last night I spoke with urology and they told me that I need to book a follow up appointment. Immediately my heart started racing and my world collapsed around me because I suffer with servere anxiety as it is and I thought that surely if I need a follow up then they must have found something.

 

Anyways, I got an email this morning saying that I have a phone appointment on Feb 2nd , so I have to ask if anyone has received bad news by phone?

I honestly can't think straight, I don't know how I'm going to be able to get through the next 5 days. All I can think about is what they found.

I asked the urology dept why I hadn't heard anything for almost 3 months and they said it's due to a backlog , but if so I don't understand why I called yesterday and got an appointment booked instantly. Does this mean that if I have bladder cancer for example, that it's been left to grow for 3 months. Would they really do that? 

I'm only 35 years old and im petrified that it's cancer.

I haven't had a single symptom since I urinated blood but I've read that cancer can grow with no symptoms. They checked for infection and I'm clear so all I've read online is that it must be a growth.

I just don't know what to do. Would they really tell me that they found something fatal over the phone?

Sorry for rambling on here. I have no one to talk to about this.

Thank you for any advice and good luck to everyone. 

 

UPDATE

I just contacted the case manager that booked my appointment. I asked him if there's any chance that if they found something like cancer on my scan, would i of been left for 3 months without any news. He said that he is only admin so obviously he can't say what the results are but in his experience if it's something serious then they would of contacted me within the first 2 weeks. This has given me a bit of hope until my phone appointment,  although I know that I obviously urinated blood for some reason. I just hope it isn't life threatening. 

  • Offline

    Hello H0W1COP3, 

    Welcome to Cancer Chat and thank you for your update. It sounds indeed highly unlikely as the case manager said that you would have been left waiting for three months without any news if it was cancer. You would normally have been contacted quickly so that you could start your treatment. So try and put any dark thoughts at the back of your mind if you can. Your phone appointment is only a few days away now so hopefully you will get some clarity on this very soon. You seem to have been reading a lot online and as many people on this forum will tell you, Dr Google is famously unreliable and is rather good at sending us into panic mode. So I suggest you try and forget everything you've read online and stay well away from Google. Keep distracted this week-end doing things you enjoy. It won't be long now until you get some definite answers and I hope that your phone appointment goes smoothly. There are helpful tips on this page on how to cope while waiting for news. 

    I will now let our other forum members who may have been in a similar situation come and say hello and share their experience with you. 

    Everything crossed for you for reassuring news on the 2nd!

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Offline in reply to Moderator Lucie

    Thank you so much. Your reply has helped me a bit more. Hopefully I will update on 2nd Feb with good news. 

    My life has just felt in pause for the last 3 months, I'm hoping that after the phonecall I can see this as a warning sign and restart with a new outlook on life.

     

    Thanks again for your reply.

     

    Have a wonderful weekend.

  • Offline

    Just got a text that I'm booked in for an ultrasound for next week. My call isn't until tomorrow so there goes tonight's sleep. Really wish they would of had the phonecall with me before sending the appointment notification. 

  • Offline in reply to FlyingCatfish

    Hi, yes thankfully I got the all clear. 

    Doctor said that I should of been contacted sooner and apologised for leaving it so long. Apparently they had my results since November. 

    He offered to put a camera in my penis to have a closer look at my bladder but as I haven't shown any further symptoms for 3 months,  he said its not necessary and that I may have peed blood due to a burst blood vessel somewhere. 

    As for the ultrasound , it's due to an abnormal result in my blood test so they want to scan my liver.

    Obviously I'm over the moon that they didn't find anything. It's all I've been thinking about for 3 months. I've taken it as a warning and completely changed my lifestyle to live healthy. 

    Hopefully I don't get any further symptoms. 

     

    Thank you for checking in. Wish you all the best!

     

     

  • Offline in reply to H0W1COP3

    That’s great news! 

    Im due to have an ultrasound today. I’m a similar age to you,at 37! Currently got a recurrent UTI.

  • Offline in reply to FlyingCatfish

    Wishing you all the best with your scan today!

  • Offline in reply to H0W1COP3

    Had my scan,kidneys and Bladder are fine. Feel so relieved. 

    Thanks bud. 

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.