Ovarian or Bowel?

Hi Everyone,

Sorry for the long post I'm about to do but I just feel I need to write it all down.  First a little background.  I am overweight and I have PCOS, I have had it for over 20 years and have had no medication for it and I have 3 children, all by c-section.  About 5 years ago I started getting horrible pains in my lower pelvic area.  I got admitted into hospital and a lot of test were done, they put it down to a bust cyst at the time and they also investigated my bowel too.  Nothing was conclusive.  I have this pain on and off since then and always put it down to PCOS.  However, the middle of November the pain was so bad I took myself to the GP.  He organised a lot of bloods and referred me for an ultrasound, which I am still waiting on.  He dipped my urine then as I had been having the urge to go a lot more often, especially at night.  My CA125 test came back at 20.  All other bloods were fine.  Fast forward to the week before Christmas and I thought I had a urine infection as I was in agony when I needed to pee and go to the toilet.  I ended up taking 3 antibiotics and my urine came back clear from the lab.  Went back to the docs because I was still in pain and starting to really get me down.  He put me on stronger painkillers and gave me an antibiotic as he thought I may have Diverticulitis.  I was feeling bloated, can only eat small amounts, decreased appetite, peeing constantly, went from being regular to constipated and my period had changed from very heavy and painful to painful and light! He was at a lose.  I phoned the next day as I was in agony and he got me seen at the surgical assessment unit.  They have now arranged a CT scan with contrast for this coming Monday and I have just had a blood test for celiac disease and I have also to do a QFIT test to check if there is any blood in my stool.  They said it's a process of elimination just now.  I am looking like I am 7/8 months pregnant when I stand up and it's hard to touch just above my belly button.  Also the lightest I've been in years...which is a bonus but not how I wanted to loose it.  
I'm just worried, and I am one of these people that likes to know everything about something so I can prepare mentally but still hope for the best.  
Thank you for listening xx 

  • Hi your in the system and having the elimination process, my ovarian cysts were found during a colonoscopy last year, the gynaecology clinic were really thorough and they sent me for more scans to see if the cysts were any larger. It all took three months when I got to the surgeons appointment l was listed for removal of the cysts, l was fortunately on the oncology surgeons list she spent 4:1/2 hours removing extensive adhesions from previous surgery and said other surgeons would have bailed out and left them.. The left sided pain has eased so hopefully that was my problem. As you can imagine it's taking longer to recover but lm delighted that the biopsies were benign.
    I hope you have a similar outcome at the moment being on an oncology list is a bonus as they are still operating at full pelt. The non urgent surgery is just not happening due to Covid and winter pressures. I was told that l would not have been listed by any other surgeons they are keeping their lists shorter by not putting anyone on them. 
    Do take care of yourself and try to relax l know it's not easy. 
    susie

  • Thank you for the reply Susie and I hope you are recovering well. I'm just counting down the days til Monday til the scan and then see what happens from there.  Just sent off my QFIT test to the hospital this morning so will see what the outcome of that is. Trying not to worry and keep my mind occupied with other things is difficult but I have a busy life so it helps.  Constantly looking like I'm 7/8 months pregnant, morning, noon and night doesn't help keeping my mind off of it, especially when the scales are going down about a pound a day and I'm only getting fatter...it's frustrating xx