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Waiting on diagnosis and results - going crazy

mrsrev86
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I had an ultrasound in December of my uterus following 6 weeks bleeding. They found a mass and told me there and then they would refer me for an urgent hysteroscopy and I should hear in two weeks. Christmas came and went and I thought no more of it, symptoms got worse and I went back to the gynae assessment last Monday and they took one look at my scan and decided there and then to do a biopsy. The first Dr didn't tell me exactly what she thought it was she did say, it's a mass and may still turn out to be a polyp. I'm going crazy waiting to hear if it's bad news. I know nobody can give me an answer here, but I feel like this is where people come who feel the same as I am right now. I'm going crazy and I am suffering very badly with my emotions and crying a lot...

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    Hi there I am in a similar situation to you I was referred on the 6th of dec on the urgent 2 week pathway seen on the 15th and  told I would have a hysteroscopy in 2 weeks , I had it yesterday which was 5 weeks and it failed so I have to now have it under a general . I came home so despondant yesterday I just want to know one way or another.. Im now thinking if it took 5 weeks for outpatient hysteroscopy how long am I going to wait for this one . Sorry I cant be more help just wanted you to know your not alone . The waiting is mental torture. Im trying to keep busy but I live on my own so its not easy . Ive watched a lot of dvds over the past few weeks , something I dont normally do, im  just to try and keep my mind occupied with other things .take care .

  • Offline in reply to poppy777

    That's awful, I'm at 5 weeks today since the initial referral and not even been given a date yet. Have they done a biopsy on you yet?

  • Offline in reply to mrsrev86

    When I went on the 15th they tried doing a biopsy which failed , hence the hysteroscopy which also failed they couldnt gain access to my womb so no they havent got a biopsy yet . So I wont get a biopsy taken until the hysteroscopy under general .

  • Offline in reply to poppy777

    Any news for you yet? I went for my Hysteroscopy and they weren't able to complete it due to a new polyp on my cervix - I have to go back and have another one under GA and they want to do endometrial ablation then and have put me on wait list for hysterectomy although still no biopsy results even though this was done three weeks ago now :( 

  • Offline in reply to mrsrev86

    hi mrsrev how bizarre ive got a polyp blocking the way too. I had hysteroscopy on fri under spinal it failed again. i did write on another thread which ive copied over below.x Thankyou for asking about me I needed that x x infact ive just got back from doctors im not coping i hope your coping ok x

    31 Jan 2022 07:09

    Anaesthetic after Covid

    31 Jan 2022 07:09 in response to poppy777

    Well I will be honest I am feeling like the unluckiest person on the planet right now . I went to the hospital Friday and the hysteroscopy failed yet again . I ended up having a spinal rather than an epidural and it failed .I have a connective tissue disorder which can cause issues with regional anaestetics and unfortunatley for me it did so I am back to square one . They could not get into my womb again , they have found an endocervical polyp blocking the way . When they stopped the operation she said they had to stop as what they needed to do they couldnt do with me not being anaesatised properly. I was so distraught by this point I wont lie it was horrific and not something I will get over any time soon and not something I ever want to go through ever again . She did say they had managed to get a tiny fragment of tissue for biopsy but wasnt sure if it was enough. So I guess I will wait and see .

    I now have to wait another 4 weeks to have it done under general anaesthetic so that will be 7 weeks post covid . I ended up having to stay overnight as the spinal finally kicked in about 2 hours after I had come back from theatre which was early evening and seeing like i waddle like a lame duck at the best of times obviously it wasnt safe for me to go home . The hospital staff were lovely im not complaing about them but i feel so frustrated i feel like im stuck in a revolving door that i can't get off . so im still none the wiser , my mental health is rock bottom , due to my connective tissue disorder I feel like ive been kicked head to foot by a donkey which is gonna take a while to rectify , I have no diagnosis and another 4 weeks for this blooming hysteroscopy and then however long it is taking for biopsies to get back .Hopefully something will come back on this tiny fragment but im not going to build up my hopes .

    So cheers covid thanks for building up my natural immunity I have antiobdies wohoo but I think Your a fill in the blank for screwing everything else up in the process

     

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