Hi All!

I hope everyone managed to get at least a little bit of respite from the fear and anxiety this weekend.

Vicki - how was the beach hut? Hope that fresh air did the trick for you.

Take care of yourselves xx

I took the kids to the cinema on Saturday, and then had my sons 4th birthday party on Sunday. So I've managed to keep quite well distracted!! 
 

The breast clinic just called, and they've moved my results appointment to 9:40 on Thursday, instead of 11:40. So at least I don't have to worry all morning. It will be school run, then appointment!! Praying for benign results!! Xxx

Hi GT63

I really feel for you.  I'm so sorry about this.  My understanding of this PCR testing is that it's a bit hit and miss.  When my son had Covid at uni he was told to not take any more PCR tests after he recovered for 3 months as it would almost certainly come back as a false positive.    This is because the dead virus' DNA is still picked up in a PCR but it's not active and you're not contagious.  This is the science apparently, so to have a cancer operation cancelled under these circumstances is very tough on you.  As you tested positive at home a while ago, you will surely have recovered by now.

I hope you get a date soon for your surgery.  My surgeon told me that a small delay wil have no affect on outcomes, but I know, understandably you will worry anyway.  
 

M x

Thank you Mary and everyone else who has replied. 
 

Had a very low day on Monday which should've been the day of surgery. I was really concerned about my mental health as I was all over the place, not helped by my job which demands emotional labour too - I'm a support worker in social care with 1:1 clients. It's exhausting when you're giving out so much but need support yourself. I've taken a few days off to adjust to this recent challenge to my treatment and try get some perspective. Monday I was like - right that's it! I can't work anymore it's too much!!

Family try but they really just don't get it, they don't get how or why I feel as I do at certain times - I just get all the positivity talk and how strong I am. At the same time I feel for them, as they love me and are having to deal with what's happening to me too.  
 

So currently feel in limbo, waiting to hear what the plan is for my continued treatment and yes, very concerned about the delay and that PCRs are not reliable! I could test positive for ages. 
 

Sending out hugs to all in this rubbish club xxx

Hi NessiJessi,

Welcome to this thread where you can be sure to get some support from everyone sharing their journeys.  I know I have from when I first started the thread  at the beginning of my own journey.

Im sorry to hear about your situation, and how worried you are about yourself and your daughter.  Do ask for and accept all the help you can at the moment.  Does your little daughter attend nursery/pre-school.  I'm sure other Mum's would be very willing to help pick her up and mind her for you whilst you attend appointments.  My children are much older but I have had a lot of support from their friends parents.  I know we dont like to ask for or accept help, but people really are very kind and will be happy to help you I'm sure.   

In these worrying times when we get results and a few knock backs, it's easy to over think everything and expect the worst.  I have done that many times!  Try not to jump ahead and take every stage as it comes, advice I have found to be very useful!  You will then look back and wonder how you got through it, but you will.    In a way the awful and worst part is all the waiting for tests and results.   You've got through that already so pat yourself in the back!  You can now press on with your treatment plan in the knowledge that you will be very well looked after.    Do keep in regular contact with your allocated nurse too at the clinic.  They are very good at getting back with queries and reassurance.

I'll be joining you on the way as I get my post op pathology results this afternoon!

Take care.  Everyone on here is wonderful and will be happy to help any time you need it.

Mary x

Sorry to hear you are feeling so down.  It's tough some days and you're right, we worry about family worrying about us!   My eldest son has special needs and has 1:1 PA's and Carers like yourself.  I have first hand experience of how you all transform our lives with your support and the lives of our vulnerable children and young adults.   Without people like you, our families lives would be much harder.  You do an amazing job.
 

THE TIME HAS COME TO PUT YOURSELF FIRST!  It it's now your turn.  Please stop worrying about everyone else and do all you can to focus on yourself.   At the moment that is all that matters.

I'm keeping everything crossed for you for surgery dates soon.

Mary x
 

Hi lovely ladies

Just to let you know that I had my smx this morning at 8.30am. Was very anxious and scared but everyone couldn't have been nicer. The op went well and there was no cancer in my lymph nodes which I am delighted about. Feeling a bit spaced out but very little pain at the moment. Hopefully just in for the one night and then home tomorrow. 
 

Hope you're all doing as good as possible. Thank you for your support and special thoughts to GT63.

xx

Thank you [@bubblesmum]‍ Pleased to hear you're safely out the other side. Take it easy xx

Thank you [@marywj]‍ xx

Wonderful news.  It's such a relief to get to the other side.  Rest up.

m x

I'm happy to report that I saw my surgeon today after their multidisciplinary meeting post mastectomy.  My knees were knocking but I'm thrilled that everything was as expected, no node involvement or any vascular involvement, everything is gone!

At 3 o clock she still hadn't had the HER2 protein test results.  Apparently my boob had been on a bit of a tour to be analysed at a larger hospital in the north west and it's negative!  My surgeon just phoned me at home.  No chemo needed and they've sent me on my merry way with Tamoxifen!

What a journey this has been these last 3 months.  
Shoutout to our wonderful NHS and breast clinics who do an amazing job looking after us all.

Stay positive everyone waiting for results and I hope you all get the news you want.  Thinking of you all this evening.

Mary xx

That's fantastic Mary. So very happy for you. 

Xx

That's fantastic Mary. So very happy for you. 

Xx