Hi Positive T,

Thanks for your lovely message.  It always gives me a lift popping on here and reading everyone's positivity.  

I know what you mean about another surgeon, could be a blessing.  Sometimes these surgeons can seem a bit cantankerous but they're usually the good ones, lol!  I know the surgeon who did my husband's surgery was one of the rudest men we had ever met, but the nurses said he was the top man and my husband was so lucky to have him.  We laugh about it now.  He was lucky indeed.  

My surgeon isn't rude but you know when you just don't have an empathy with someone?  When you feel so vulnerable you just want reassurance but they're not there to mollycoddle I suppose but just get on with what we need.

I wanted another lead surgeon that had done my aunts mastectomy and reconstruction but she's not available until June!  I'd already seen her previously about a cyst. When I went in for my original results I thought I was seeing her again but ended up with another surgeon who is ok but now it looks as if I will see someone else as she's booked until end of March!   I feel a bit passed around tbh!

Im just trying to focus, it just needs to be done now and I need to get on with it.

Sending a hug back xx

Oh bless you. It's such a rollecoaster. 

I do think that surgeons can be a bit arrogant/impersonal by nature.....but this may well be what makes them good at their job!! I work in Healthcare and some of the best consultants are a bit lacking in their bedside manner but are so good at what they do!

I truly hope you get a surgeon who can do your surgery in a timely manner and who isn't too much of an *** haha!! 

Sending hugs xx

Hi Positive,

Thank you for welcoming me.

Yes I'm glad I found this chat too, and I feel we can all support each other in one way or another. I am new to all this, and since my diagnosis, everything is in 'baby steps' and everyday is a new learning day for me. I'm looking forward to our chats

Vee xx  

Hi Mary

Sorry you are feeling down about all of this. I can only say that if the DCIS is low grade, I would take hope from that. My DCIS is grade 3 and even then, there is still a percentage that will never escape, so please don't worry yourself about all the bits and bobs that come after - i.e. nodes etc. Only deal with what is in front of you right now. And from what I can gather, it is that you have something that many people don't even class as cancer and many women have, live with and never know they have it. Some even ask for active management, i.e. just checking on it every few months. (I think you know this though and didnt think your anxiety could handle that if I recall correctly?) DCIS can cause all sorts of anxiety, but try and stay positive. 

I am feeling OK for the first time since my treatment last Tuesday. No headache, sickness or anything else. It feels like a miracle! 

Big hugs to you and everyone else on our chat. xxx

Hi Vicki,

Thanks for your message.  You're so right.  I'm doing what I always do jumping forward with what ifs and panicking about things that I don't even know about yet.  I've reined myself in AGAIN!  On Wednesday I'll get the date for surgery so will need to focus on that and get to the other side.  I want to be in reasonable shape for Easter and need to book a holiday.

From your update it sounds as if you are doing incredibly well.  I'm sorry to hear you felt rotten initially on chemo that must have been awful but each session is another stage closer to finishing and you seem so strong.  All I can think of saying is just so well done for getting through it, you're amazing.  

Sending you a hug xx

Hello, I've been reading this thread over the last couple of days. Very supportive and friendly! Similar situation to most of you - mine is PLCIS picked up through calcifications in breast at mammogram.

Diagnosed 25th Jan

Lumpectomy 14th Feb followed by emergency re admission on 19th Feb with huge haematoma. Surgery to evacuate haematoma on 21st Feb. 
Phew!

Been back to clinic today for a follow up and dressing removed. My scar is nastier than I thought but let's hope the critter is gone and I get clear margins in my results. I'll also be having radiotherapy. 
Im hoping for more interaction and support here than I've had on a different forum, I really need to talk to others to keep perspective and some sanity!

So here we are getting to know each other even though we'd rather not be here at all. Happy to share, support and chat. 
Also if anyone knows of any local groups, I'm in Derbyshire xx

Thank you so much ️ xx

Welcome GT63.

Sorry you find yourself here but glad you have discovered this chat as all the ladies are amazing strong supportive people and I have really valued being part of it.

Sorry to hear about your haemotoma. Not what you needed after the stress of diagnosis and lumpectomy.

Happy to chat any time. Wishing you all the best xx

Evening ladies!

Hope you are all doing OK!

Just to update, I met with my surgeon today and there was nothing new found on my MRI so plan remains to have wide lump excision with bilateral reduction. They will have to remove a bit more of the left breast than initially thought and I will lose my nipple but in the grand scheme of things I am good with that. 

Fingers crossed for clear margins but if not then am open to the idea of mastectomy although surgeon feels optimistic.

Next step surgery on 10th March so time to get organised and drum into my four year old that she won't be able to jump on mummy for a while lol.

Sending hugs to all xx