Hi All!

I hope everyone managed to get at least a little bit of respite from the fear and anxiety this weekend.

Vicki - how was the beach hut? Hope that fresh air did the trick for you.

Take care of yourselves xx

I took the kids to the cinema on Saturday, and then had my sons 4th birthday party on Sunday. So I've managed to keep quite well distracted!! 
 

The breast clinic just called, and they've moved my results appointment to 9:40 on Thursday, instead of 11:40. So at least I don't have to worry all morning. It will be school run, then appointment!! Praying for benign results!! Xxx

Hi Mary. 

Thank you! Still a few weeks to go before my surgery date and have MRI first so fingers crossed for that.

In fairness the surgeon basically told me what she would do and I just went along with it. I do get a really positive feeling about her and the team and would definitely want to be evened up! I have big boobs....32F so would really struggle with being noticeably uneven. And I think she's talking about removing approx. a quarter of left breast so would definitely be obvious. Assuming that nothing extra is found on MRI I am sure I will go ahead with what is being recommended.

It's so tough tho isn't it trying to balance the pros and cons and potential additional benefit of mastectomy in terms of reoccurrence. Such a minefield! 

Hope you get some clarity following your further enquiries. 

Sending best wishes xx

Hey all, sorry for cate crashing, I have no idea where to even start, I have read this entire thread, the strength on all women here is so inspiring! 
I am newly diagnosed IDC with ER+ and waiting on HER2 results. I am so sorry you are all going through this, and just wanted to post to say you all have this, and hoping to be able to provide some support x sorry for crashing .. feel like a new kid in a new school right now 

Hi Rainbowninja, 

Welcome to the gang! No need to apologise for gate crashing....many of us have done the same but have been welcomed unconditionally. I have found this chat super supportive and it has really helped me to know I am not alone. And nether are you. 

So sorry you find yourself here and that you have been diagnosed with IDC. 

How are you feeling? I hope you are doing ok and find some solace in knowing your situation and hopefully having a plan to beat this damn disease. 

Sending best wishes and feel free to lean on us for support. Xx

Hi Rainbowninja87,

You are very welcome.  The wonderful ladies on this thread have been amazing and helped me cope when I was diagnosed with IDC grade 1 last month.  I was pretty scared and reached out on here, not knowing what to expect.  
 

I think everyone has felt supported by some very wise words and helpful advice.  I know I have, since I started the thread, particularly in the difficult wait for results.

I hope you can feel supported on here, you are not alone. x

Hi Vicki, 

How are you? Did you have your first chemo today? Hope it went OK and you aren't feeling too many side effects.

Sending hugs and thinking of you xx

Evening ladies!

Hope you are all doing OK!

Just thinking that I ought to start preparing for my surgery. For those who have been through it (I'm expecting to have upper left quadrant removal with lift and bilateral reduction /or similar) any tips on what helped with recovery and generally making things easier post-op?

I don't even own a pair of slippers! Do I need slippers? I feel like I need some slippers lol!!

And what about post-op bras? 

My daughter has bought me some button front pj's for my birthday (bless her she wanted to buy mummy a pretty dress but I subtley suggested pj's might be more practical!)

Anyway, enough rambling! Any tips hugely appreciated!

Sending best wishes to you all xx

Hello you lovely person. Thanks for thinking of me. So much appreciated.

Yes first EC chemo was yesterday. The meds going through were OK and I had lovely nurses. Just so wonderful. Felt OK getting home but went badly downhill from about 5pm! Nausea, headache, kidney pain, mood swings and no chance of sleep. However, I do think a lot of that was because of the steroid I'd had as well. I finally slept at about 1am and today I feel far more human. 

When do you have your surgery?

Xxx

Hi Vicky hope you feeling ok I am having my second cycle of chemotherapy next Monday                       this week feeling ok sleep is a problem tho. My first post  love to all x

Hello and thank you. Are you given a steroid as a pre med? I had dexamethasone and I hear it can stop you sleeping properly which is counter productive for me. My body needs to heal after that onslaught! I toldbthe nurse this morning and she said she would ask about the dose being reduced. 

What chemo are you on? 

Hope you are feeling OK and thanks for messaging xx

Oh no - sorry you had such nasty side-effects, but gald you are feeling more human again today!

Let's hope that they can alter your steroid dose next time - I imagine it's always a case of trial and error until they get the balance right as everyone is different.

On the flip side, sounds like you have great nurses ansd support for the chemo sessions themselves so that's good to hear.

When is the next one?

My surgeryis scheduled for 10th March. Have an MRI tomorrow (Nice birthday present haha) so if that doesn't show up anything unexpected then should be all good to go for the 10th.

Fingers crossed!!

Xxx

Oh no - sorry you had such nasty side-effects, but gald you are feeling more human again today!

Let's hope that they can alter your steroid dose next time - I imagine it's always a case of trial and error until they get the balance right as everyone is different.

On the flip side, sounds like you have great nurses ansd support for the chemo sessions themselves so that's good to hear.

When is the next one?

My surgeryis scheduled for 10th March. Have an MRI tomorrow (Nice birthday present haha) so if that doesn't show up anything unexpected then should be all good to go for the 10th.

Fingers crossed!!

Xxx

I hope so with the steroid as I did not like it at all. 

Cannot fault the care. Such caring and hard working ladies. 

Best of luck for your mammogram and happy birthday to you. Let us know how you get on.

Vicki xxx

Thank you Vicki!

I will keep you posted xx

I got my letter on my birthday recalled for second mammogram fingers crossed for you I am now on my chemotherapy journey

They have great timing don't they!!

Hope you're doing well on your chemo journey. Sending best wishes xx

Thank you best wishes to you. Love to all

Happy Birthday PositiveT- hope you have some lovely things happening apart from the MRI.