Hi All!

I hope everyone managed to get at least a little bit of respite from the fear and anxiety this weekend.

Vicki - how was the beach hut? Hope that fresh air did the trick for you.

Take care of yourselves xx

I took the kids to the cinema on Saturday, and then had my sons 4th birthday party on Sunday. So I've managed to keep quite well distracted!! 
 

The breast clinic just called, and they've moved my results appointment to 9:40 on Thursday, instead of 11:40. So at least I don't have to worry all morning. It will be school run, then appointment!! Praying for benign results!! Xxx

Hi, just thought I'd log on to see if any news and I see you have been diagnosed with DCIS. Do you know what grade? I'm really pleased you don't have any invasive, that is great news. I expect you are relieved you know what is what? Xxx

Really glad to hear you are doing well! And yay for a nice glass of wine! 

Thanks Vicki. 

Yes very much a relief that no invasive. Plan is in place so just onwards and upwards from here! The waiting was definitely the worst! 

Apparently it's a mixture of low and intermediate grade so that's positive too.

How are you doing lovely? X

Hi PositiveT

It's good news that they are low and intermediate. Do you know how big they are?

x

That's the one thing I forgot to ask!!

So no idea!!

I will ask next time I see the doctor.

Xx

Hello

I'm OK. Had to have mammogram and then a biopsy of my neck this morning then i saw the consultant andbthe decision has been made to start me on chemotherapy first, so seeing oncologist on Tuesday to find out how often how long what dose I suppose? I'll be having hormone therapy at the same time. I'm definitely going to do the fasting before chemo as I've read positive things about doing that. 

I'm not going to use a cold cap, but I am having a hair replacement system made so I don't have to look at myself bald!! It's the one thing I can control at least hope all of you lovely ladies are doing OK. Xxx

Hi!

Good to hear your treatment plan is coming together and I hope your meeting with the oncologist goes well on Tuesday. I've not heard of hair replacement system but it sounds really positive!

I remember when my mum lost her hair from chemo......she bumped into my then boyfriend on the landing one night (in just her knickers - don't ask me why she was wandering around half naked!! ) and instead of covering her boobs she put her hands over her head!! He was mortified haha!!!

You've got this Vicki! Sending lots of love xx

Oh bless your mum and how funny it was the head that was grabbed instinctively!! 

Thanks my dear. I'm certainly trying to deal with this. Xxx

Evening ladies!

Just thought I'd check in to see how everyone is doing.

Sending hugs x

Hello

How are you doing? So my update is that I saw my oncologist yesterday and start chemo on Tuesday. I also had the results of my neck biopsy tonight and it's negative thank goodness!! I cried with relief. So it's only in my left boob and the invasive nodules are both less than a cm. I'm triple positive so hope to respond well to chemo and hormone therapy. My chemo qill be every two weeks for 8 weeks and then I'll be checked and then move on to a different chemo drug once weekly for 12 weeks. 5 months in total. 

Xxx

Hello

How are you doing? So my update is that I saw my oncologist yesterday and start chemo on Tuesday. I also had the results of my neck biopsy tonight and it's negative thank goodness!! I cried with relief. So it's only in my left boob and the invasive nodules are both less than a cm. I'm triple positive so hope to respond well to chemo and hormone therapy. My chemo qill be every two weeks for 8 weeks and then I'll be checked and then move on to a different chemo drug once weekly for 12 weeks. 5 months in total. 

Xxx

Hi Vicki, 

So good to hear from you and so pleased that the neck biopsy was negative. And triple positive is great news too. Wishing you all the best for your first chemo. You've got this!

I'm doing fine. Still waiting for MRI date but expecting it to be next week then assuming all as expected will be having my surgery 10th March. Fingers crossed.

It's my birthday next Thursday so hoping I will be able to have lunch with my mum and sis rather than in an MRI but we shall see!!!

Thank you for your update! Sending lots of love xx

Hi Vicki, 

How are you? Did you have your first chemo today? Hope it went OK and you aren't feeling too many side effects.

Sending hugs and thinking of you xx

Evening ladies!

Hope you are all doing OK!

Just thinking that I ought to start preparing for my surgery. For those who have been through it (I'm expecting to have upper left quadrant removal with lift and bilateral reduction /or similar) any tips on what helped with recovery and generally making things easier post-op?

I don't even own a pair of slippers! Do I need slippers? I feel like I need some slippers lol!!

And what about post-op bras? 

My daughter has bought me some button front pj's for my birthday (bless her she wanted to buy mummy a pretty dress but I subtley suggested pj's might be more practical!)

Anyway, enough rambling! Any tips hugely appreciated!

Sending best wishes to you all xx

Hello you lovely person. Thanks for thinking of me. So much appreciated.

Yes first EC chemo was yesterday. The meds going through were OK and I had lovely nurses. Just so wonderful. Felt OK getting home but went badly downhill from about 5pm! Nausea, headache, kidney pain, mood swings and no chance of sleep. However, I do think a lot of that was because of the steroid I'd had as well. I finally slept at about 1am and today I feel far more human. 

When do you have your surgery?

Xxx

Hi Vicky hope you feeling ok I am having my second cycle of chemotherapy next Monday                       this week feeling ok sleep is a problem tho. My first post  love to all x

Hello and thank you. Are you given a steroid as a pre med? I had dexamethasone and I hear it can stop you sleeping properly which is counter productive for me. My body needs to heal after that onslaught! I toldbthe nurse this morning and she said she would ask about the dose being reduced. 

What chemo are you on? 

Hope you are feeling OK and thanks for messaging xx

Oh no - sorry you had such nasty side-effects, but gald you are feeling more human again today!

Let's hope that they can alter your steroid dose next time - I imagine it's always a case of trial and error until they get the balance right as everyone is different.

On the flip side, sounds like you have great nurses ansd support for the chemo sessions themselves so that's good to hear.

When is the next one?

My surgeryis scheduled for 10th March. Have an MRI tomorrow (Nice birthday present haha) so if that doesn't show up anything unexpected then should be all good to go for the 10th.

Fingers crossed!!

Xxx

I am havingEC90 Epirubicin/Cyclophosphamide for 3 cycles fiollowed by three cycles of  Carboplatin and weekly Paclitaxel.  I was sent home with steroids to take for two days  I think. Will find out more on Monday.  Thank you x

I'm having ec for 4 cycles then taxol weekly for 12 weeks. 

How did you feel after your first ec? Were you sickly or any hot flashes? I'm getting those today! I feel rather empty inside and am hoping that passes soon. I only had my treatment yesterday though so I guess to be expected. Xx

I hope so with the steroid as I did not like it at all. 

Cannot fault the care. Such caring and hard working ladies. 

Best of luck for your mammogram and happy birthday to you. Let us know how you get on.

Vicki xxx