Hi All!

I hope everyone managed to get at least a little bit of respite from the fear and anxiety this weekend.

Vicki - how was the beach hut? Hope that fresh air did the trick for you.

Take care of yourselves xx

I took the kids to the cinema on Saturday, and then had my sons 4th birthday party on Sunday. So I've managed to keep quite well distracted!! 
 

The breast clinic just called, and they've moved my results appointment to 9:40 on Thursday, instead of 11:40. So at least I don't have to worry all morning. It will be school run, then appointment!! Praying for benign results!! Xxx

Hi ladies. Only just on way home now. So, I had to have another ultrasound and three more biopsies of the calcifications in my suspected DCIS. I also had to have an aspiration of a lymph node in my neck as it was flagged on my pet scan. However, I was riddled with covid at the time of the scan as I did a lateral flow test that evening that was positive. So, the consultant thinks that is why it has shown up. My tonsils showed inflammation too. Can't believe I've had covid on top of all of this too!! They need to absolutely ensure it is deffo DCIS before I get my treatment plan. However the rest of the scans showed clear lymph nodes and no distant spread. So, silver linings and all that. Honestly my poor boob, never had so many needles in it. Its only small too! Thanks for checking in on me. I'm so grateful to you both xxx

That's really good news, Vicki! I'm sure that node in you neck was just inflamed due to covid, or I doubt he would have suggested it as a possibility! And that totally makes sense! 
Your poor boob indeed! Mine is still super sore and bruised from my biopsy last Thursday!! 
 

So glad the rest of the scans were clear! I hope you can start with your treatment plan soon, and get on to the home stretch! It sounds like they're taking good care of you! Xxx

Mary, you're totally within your rights to get a second opinion, especially as you feel as though things may be being missed! I personally would too, even if just for peace of mind! That's really good news about your auntie! Keep focus on the positive outcome stories. 
 

You will know how and when the time is right to tell your boys. I don't remember my mom sitting and explaining anything to me, maybe she did but I've just blocked it out, or maybe she just didn't want to worry me. But I do remember seeing her crying when she must have had her diagnosis. But she just played it down to me, saying she was worried as she had found a lump, but she was sure it was fine. Other than that, I just saw her carrying on as normal as possible. I wish she would have confided in me a bit more. But I was only about 12/13.
 

I hope you get some clear answers, and positive steps forward very soon! Xxx

So glad to hear there is no spread and that the lymph node was covid related! Who knew having covid could have some positives?!?

Did they say when they would have the biopsy results?

I am the opposite (pretty hefty boobs lol) but like Linze am still bruised. Its a very impressive shade of green and purple at the moment haha! Our poor boobs are really being put through the ringer!!

Sending hugs x

Thanks so much xx

Thanks Linze x

Xxx

Hi Mary

Hope you don't mind me jumping on this thread but I have been finding this forum very helpful and reassuring since December when I was diagnosed with two areas of DCIS in my left breast- I'd never heard of DCIS before.  I was initially told I would have a mastectomy which completely blindsided me as I always thought that was a last resort. My consultant then decided he could do a lumpectomy instead which I am having this Wednesday 9th, which I think is two days before yours. 

Like everyone, I haven't slept properly for a couple of months and am looking forward and dreading Wednesday at the same time! I keep hoping it's all a bad dream.

Wishing you the best of luck for Friday and to everyone else on this journey. X
 

Hi Bubblesmum,

You are very welcome on here.  I'm so sorry to hear you are going through this too, our situations do sound quite similar. This forum has given me a lot of comfort too as this difficult time for us all.
 

Like you, I'd never heard of DCIS either (or these flippin calcifications).  As you say it's been a couple of months of worry and stress of the unknown.  I'm so pleased to hear that you have your lumpectomy next week and the biopsy stages and waiting for results are all behind you.  Once you are through the surgery you can pat yourself on the back with the finishing line hopefully in sight for getting back to some normality.  Are you having radiotherapy afterwards?

I had some difficult news last week and they've postponed my surgery this Friday.  I got a call from the radiologist saying they had seen another area of calcification after I'd had my magseed put in!  It was a blow!  I've now got to have everything biopsied again on Tuesday morning so I feel a bit one step forward, two steps back at the moment.  
 

It's interesting to hear that you had two different areas of DCIS and that doesn't necessarily mean a mastectomy. I worried about how they could do a lumpectomy on more than one area. My first calcifications showed a tiny 1mm of grade 1 invasive and they didn't mention DCIS, although it's since been suggested that the remaining calcs probably are DCIS.  I will just have to see what the new biopsy shows.

If it is DCIS then I'm told it will be sorted so in that sense you can have some reassurance that whilst this has been an awful time, you will get through it with a good outcome.

All the very best for your surgery on Wednesday.  Let us know how it goes.  X
 

Hi Mary 

Thank you for your good wishes. I'm sorry to hear that your surgery has been put back but your team sound very thorough and I'm sure they are doing the right thing with another biopsy. They need a complete picture to give you the best possible treatment and outcome.

My two areas of DCIS are very small - 8 and 11mm but I also have very small boobs - 32B on a good day! My consultant reckons he'll be taking out 20%. I'm a little worried as to what it will look like but more concerned that they may find something else when they analyse it. And yes I do have to have radiotherapy- not sure how many sessions yet.

Am trying to keep as busy as possible in the next couple of days and then have a list or Netflix recommendations to watch. If anyone has any others I'd love to add them to the list! X

Hi Mary 

Thank you for your good wishes. I'm sorry to hear that your surgery has been put back but your team sound very thorough and I'm sure they are doing the right thing with another biopsy. They need a complete picture to give you the best possible treatment and outcome.

My two areas of DCIS are very small - 8 and 11mm but I also have very small boobs - 32B on a good day! My consultant reckons he'll be taking out 20%. I'm a little worried as to what it will look like but more concerned that they may find something else when they analyse it. And yes I do have to have radiotherapy- not sure how many sessions yet.

Am trying to keep as busy as possible in the next couple of days and then have a list or Netflix recommendations to watch. If anyone has any others I'd love to add them to the list! X

Hi Bubblesmum.

Welcome to the gang! Not necessarily the kind of gang anyone would want to join but everyone on this chat is so amazing and supportive and in one way or another we all understand what you are going through. The support on here has really helped me.

Really sorry to hear that you have DCIS. That must have been a huge shock. I'm still waiting for my biopsy results so in a slightly different place but appreciate the fear and anxiety you will have been going through these last few months. 

I am sending you best wishes ahead of your surgery on Wednesday and hope it goes well.

Take care x

Hi PositiveT

Thank you for your message and good wishes. I think I'm still in denial so Wednesday will be a reality check. I'm more worried about having the wires put in than the lumpectomy as I'll be awake for that part.

Wishing you the very best outcome for your biopsy results. When are they due? 
 

x

Hi!

Getting my results on Friday. Originally had an appointment for today but results weren't going to be back so they moved it. An extra joyful few days of waiting!!

Yeah I think I'd rather they do everything under general haha. Do they put the wires in on the same day as the lumoectomy? Hang in there and will be thinking of you on Wednesday x

Hi

Yes the wires go in a couple of hours before the lumpectomy. Trying to do all the jobs around the house that I won't be able to do in the next few days - no ironing next week is a plus! Will let you know how it goes. Good luck for Friday. x

Hi, I'm new here and in the same boat as PositiveT. I was supposed to get my results from a Vacuum assisted biopsy tomorrow morning and just had a call to postpone for A WEEK, as 'we can't rush these things' (according to the sweet nurse, who rang). It's absolute torture! 

Thank you. I will let everyone know how I get on. Keeping everything crossed.

Wishing you all the best for tomorrow. Sounds like you are getting fully prepared to enable yourself time to rest and recover afterwards.

Take care x

Welcome Tinylon. 

You're not wrong....waiting is absolutely hellish.

And really sorry to hear you now have to wait for another week. That's ****.

The ladies on here are all fabulous and supportive so feel free to moan, vent, or whatever helps! I've really valued having this forum to share with others who are going through similar and truly understand. 

Thank you for sending luck! Right back at you for next week xx

Thank you kindly - I'm trying to find some patience to apply...

Hello Bubblesmum and Tinylon!

So sorry you're both here!! I just wanted to wish you both the best of luck and I'll be sending prayers. 
Bubblesmum - that your surgery goes straightforward, without any stress and that there are no further findings post op! I hope you make a quick and full recovery. 
 

Tinylon - that's so frustrating that you have to wait longer! You have to really psych yourselves up for these things, so to have to wait longer is awful! Just try and keep yourself busy and distracted! 
 

I had benign results last Thursday, so stay positive. Xxx

Hi Linze16

Thank you for your message. So glad you had a benign result last week. Can't quite believe my op is so nearly here after all the weeks of waiting. Hoping that all you lovely people who are waiting are ok and hanging in there. This is a strange experience for sure. But this forum is a great place to sound off and share thoughts and worries. X