Week 5 if no MRI scan results

I had an Mri scan 5 weeks ago...heard zilch...4 days ago I had a broncoscopy and a lung levarge.

Few months ago 2 of my neices from different sisters have both been diagnosed and are having treatment for stage 3 breast cancer with one neice having it spread to her lymph glands. I have also found out that one has the BRCA01 gene and geneticists test for 02 as well. My nephew and my son also have autism which is linked to this gene. My mother who died of esophageal cancer on Christmas day 7 years ago told myself and my sister few weeks before she died that she had 4 nipples.

I went for scan on my lungs xrays and 2 ct scans and I have shadow on my lung and also found cystic lesion in my pancreas which is also connected to this gene, I have had for years had calcified granulomas in my lungs and spleen and emphysema but have been just told its cos of smoking and that was 4 years ago and now I got all this.

I did some research myself cos this has all just blown my mind. I also have had emergency mammogram and ultra sound cos I  did a breast test when I heard about my 1 neice and I had lumps too and they are also cysts and calcified masses.

My own delving into breast cancer research has led me to something call the scaramanga gene, named after a bond character that had extra nipples...no joke, and I got all these genetic forms to fill in but I don't see any if my children and I'm 52.

I think because all that's been wrong with me has just be ignored because I'm a dirty smoker I now could have pulmonary fibrosis and god knows what else.

It's been the worst year and this country is just not the same anymore, I feel noone gives a *** no more.

I am hoping for the best but prepared for the worst.

My eldest sister died of breast cancer, my next sister down had an amole pregnancy and my father died of lung cancer.

I cannot be arsed chasing my doctors because they have treated me so dreadfully...long story.

To wait this long under these circumstances is just unacceptable and I'm getting married in March.. I hope.

But I hope info I pass on is good to know regarding breast cancer and if it helps someone is done it's job...moving to England from Wales in 2 weeks so not putting my life on hold to move forward, just living for today now.

Good luck to all in same boat.

 

  • A warm welcome to the forum Xris69 although I'm very sorry to read what you and your family have been through. It sounds like things have been tough, especially over the last few months.

    I hope you hear back from some of our members soon but if you would like to discuss anything you've mentioned in your post with one of our cancer nurses then you're welcome to give them a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to support you and answer any questions you may have at this time.

    In the meantime, we'll have our fingers crossed for good news and wish you all the best with your move and upcoming wedding. 

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi steph.

    Thank you for your reply.

    I got hold of the consultants secretary to find out they had forgot to send me an appointment.

    I am moving on the 20th of this month from Wales to the English countryside so was told she would speak to consultant.

    I received a letter this morning for a telephone consultation for 31st January which I will now be stressing over for yet another 3 weeks plus the fact I will need to register with a new doctor surgery after I move in.

    I cannot tell you how fed up I am, I have no idea what is wrong or what the results will be and I'm pretty sure results of very recent broncoscopy and bal won't be done yet or if they are.

    I am not even bothering calling my doctors surgery where I live now because they told me I did not have a lump and I did. They also told me my chest xray was fine when it was not.

    To be honest I feel let down yet again by our fast fading nhs and what will be will be. I am sure nature will give me answers eventually.