I had an Mri scan 5 weeks ago...heard zilch...4 days ago I had a broncoscopy and a lung levarge.
Few months ago 2 of my neices from different sisters have both been diagnosed and are having treatment for stage 3 breast cancer with one neice having it spread to her lymph glands. I have also found out that one has the BRCA01 gene and geneticists test for 02 as well. My nephew and my son also have autism which is linked to this gene. My mother who died of esophageal cancer on Christmas day 7 years ago told myself and my sister few weeks before she died that she had 4 nipples.
I went for scan on my lungs xrays and 2 ct scans and I have shadow on my lung and also found cystic lesion in my pancreas which is also connected to this gene, I have had for years had calcified granulomas in my lungs and spleen and emphysema but have been just told its cos of smoking and that was 4 years ago and now I got all this.
I did some research myself cos this has all just blown my mind. I also have had emergency mammogram and ultra sound cos I did a breast test when I heard about my 1 neice and I had lumps too and they are also cysts and calcified masses.
My own delving into breast cancer research has led me to something call the scaramanga gene, named after a bond character that had extra nipples...no joke, and I got all these genetic forms to fill in but I don't see any if my children and I'm 52.
I think because all that's been wrong with me has just be ignored because I'm a dirty smoker I now could have pulmonary fibrosis and god knows what else.
It's been the worst year and this country is just not the same anymore, I feel noone gives a *** no more.
I am hoping for the best but prepared for the worst.
My eldest sister died of breast cancer, my next sister down had an amole pregnancy and my father died of lung cancer.
I cannot be arsed chasing my doctors because they have treated me so dreadfully...long story.
To wait this long under these circumstances is just unacceptable and I'm getting married in March.. I hope.
But I hope info I pass on is good to know regarding breast cancer and if it helps someone is done it's job...moving to England from Wales in 2 weeks so not putting my life on hold to move forward, just living for today now.
Good luck to all in same boat.