Hi all

I had a dermoid cyst removed in October which had caused a lot of symptoms. I finally got the results of the biopsy last week which showed a normal dermoid, but with 3.5mm of abnormal cells - the doctor mentioned  that it was rare to find them and said carcinoid. They said we might have to remove my ovary as the cyst tore during removal (which I'm assured is normal) and that I will be discussed at an neuroendocrine MDT on 4th Jan - then my follow up appointment is 19th Jan.

The doctor said my other ovary biopsy was normal and that she didn't want me to go away and panic about the ovary - as she knows fertility is a concern. 

The cyst and then codeine after the operation gave me constipation which gave me minor bleeding and itching - I reported this to my doctor / took medication for piles which up until this appointment, I was happy that they had worked as I was feeling back to normal with no bleeding for weeks. I still have had pain (very minor - more a nerve feeling) across my lower back and my right bum cheek. I barely noticed this and when I did - thought it was bad posture pain (I work from home) or referred ovary pain after the operation as they had told me my cyst had nerves in / I'm still having occasional pain there. 

Since the appointment last Tuesday I have researched a lot and sent myself into a spiral about carcinoid cancer - I know the cyst is out and keep trying to remember that it was just abnormal cells (I asked 3x and they said not cancer - but cells that had the potential to become cancer) but I'm really scared by the fact that NETs don't seem to have symptoms and I'm worried that the ovary wasn't the primary one. I also had a very small amount of blood when I wiped today and feel very anxious which I think is messing with my gut - so my stool was a mix of hard at first and then soft. Would the hospital doctors have access to my GP records? I've not seen the same doctor twice and haven't been asked about post op recovery. I'm also unsure whether to go to my doctor about the small bleed and worries now in relation to the abnormal cells in case they are connected.

My friend works in cancer and she said the biopsy of the abnormal cells would've provided some intel that the doctors will be working from in terms of how urgent this is / if these were isolated abnormal cells / and any next tests needed - but waiting until the 18th feels impossible and I am really struggling with thoughts around my partner, our mortgage, my fertility and ultimately worst case scenario and dying. 

if anyone has any advice or a similar experience I'd love to hear.