Suspected Ovarian Cancer - Scared for Results

Hi All

I'm just looking for some advice and reassurance (if that's possible) 

About 12 weeks ago I started with intense diarrhoea and stomach cramping, when it hadn't subsided after a couple of weeks I went to my GP who run some bloods and found I had an extremely high eosinophils count (19.7 should be under 0.4) I was called to A&E who casually said it could be blood cancer. 
After being asked to return the next day, I got an appointment arranged with haematology and a colonoscopy. The colonoscopy was all clear (including biopsy) and the haematologist said he didn't think it was blood cancer as my levels are gradually falling without meds (down to 7.8 now).

Anyway, in between all that it was discovered that I have ascites and smooth thickening of the peritoneal from a CT scan (but no mass/ tumour present). It was this point I was referred on 2 WW and that was 1st December - on 3rd December I paid to see a private gynaecologist who said he thought it was an infection as the peritoneal thickening was smooth and I have also had a TV ultrasound which was normal. I had a baby 6 months ago and a third degree tear, his theory was that my tear had got infected (which it did) and affected my abdomen. Anyway, he arranges an ascites tap for cycology which I had on Monday 13th December - an appointment then came through for Christmas Eve for gynaecology oncology under 2WW so that will have been almost 4 weeks from referral. My mental health has been shocking and on Friday I went to see my GP and he had access to the ascites results and showed me it said in black and white 'no malignant cells' however today I spoke to someone in radiology to go and get the fluid drained who said that I was discussed at histology MDT yesterday - why would I be diacussed at MDT if there was no malignant cells? They then rung me from gynaecology to rearrange my appointment to tomorrow 23rd at 4.20pm with the gynae oncologist because I'm being discussed at their MDT tomorrow before my appointment. I'm just wondering, do all cases go to MDT? Even those where it isn't cancer? The woman who called to change my appointment asked if I was bringing anyone so now I'm panicking but she said 'you sound quite anxious so you can bring someone if you want'. I keep trying to tell myself because they have left it over three weeks instead of seeing me in the 2WW they aren't too concerned but then I've read posts on here where they've been waiting a while to still be told bad news. 
I just can't get the thought of leaving my 6 month old out of my head, this whole process has severely affected my mental health and I'm currently on citralapram, diazepam and propanalol trying to keep my nerves calm. 
Any advice/ experiences welcome and appreciated...

  • Hello Charlotte

    I'm sorry to hear about all that you've been dealing with yesterday. I wanted to post to ask how you got on at your appointment yesterday? I do hope that the team was able to give you some answers and reassurance about things. 

    Let us know how you are when you feel able to. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi Jenn

    Thankfully it was good news and I was discharged back to immunology and gastroenterology, they think it may be more some type of immune disorder. He explained I was only referred to gynaecology oncology due to the ascites (which had no malignant cells and just full of eosinophils) and I had a CA125 of 470 but that's now gone down to 181 and apparently is always raised in ascites no matter the cause. 
    Feeling a little better now! 

  • Hello Charlotte

    Well, that's definitely some good news! Hopefully, the other teams will be able to get a handle on the rest of your symptoms soon. 

    I do hope that you have a lovely first Christmas with your baby :happy:

    Best wishes, 
    Jenn
    Cancer Chat moderator