Please help. Sezary Syndrome - Cutaneous T-cell lymphoma

My husband (aged 61) was diagnosed with Sezary syndrome on Friday. To say it was a shock is something of an understatement. He went to see a dermatologist privately, who was provided by his company’s insurance. He went with an itchy skin and was bluntly told he had aggressive sezary, that it isn’t curable and there was no treatment available.

Looking online at the nhs site, it would seem there are several treatments available. My husband has an appointment with an nhs dermatologist consultant next Saturday.

We are still reeling from this and would appreciate any advice about anything really.

  • Welcome to Cancer Chat Christal although I'm sorry to hear your husband has been diagnosed with sezary syndrome and that the private dermatologist said no treatment was available. This must have come as quite a shock but I'm glad to hear you've found treatments are available on the NHS so fingers and toes crossed that some of these options are offered to your husband next week. 

    Hopefully some of our members who have contended with sezary syndrome will offer their support and advcie to you soon but in the meantime I hope this information we have about your husband's diagnosis, as well as that offered on Lymphoma Action, will help make this a little less scary and overwhelming.

    If you or your husband would like to talk things through with one of our cancer nurses then do give them a call on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and will do all they can to support you both at this time.

    I hope my reply has helped and that good news comes your way.

    All the best,

    Steph, Cancer Chat Moderator