Hi Bingo4

I haven’t had primary bladder cancer, but I had cancer spread over my bladder, and as part of a much larger surgery had my bladder removed 20 months ago. I was 57 when I had my surgery, and I also have a colostomy. Yes, it’s life changing, but I just wanted to say that you can have a really good quality of life after bladder removal. I find it easy now to manage, but it’s certainly a challenge at the start! 

I would also say that I have never regretted my surgery for a moment. I would not be here without it, and living with 2 stomas was for me a small price to pay for my survival. I had a lot lower chance of success than you’ve been advised-more like 50%, but I have been well ever since and have never had to return to hospital for any further treatment. I got used to my new plumbing pretty quickly and it’s second nature now for me. It’s a big decision for you, I appreciate that, but don’t imagine that you can’t have a good quality of life afterwards. I’m packing my case today for a holiday abroad leaving tomorrow!