Hi Nameste 

Thank you for the reply. When I have my review after my radiotherapy finishes, I was going to ask about zolodex. I just hate the fact that my cancer is so hormone fed so I want to do whatever I can to minimise anymore risk in the future. Have you found tamoxifen ok? I've been on it a few weeks now but im also having radiotherapy so I'm not sure how I'm feeling is down to the tablet or radiotherapy! 

X

Thanks you for taking the time to reply, I have read it several times and it has helped me so much.

I didnt know that a Grade 3 like mine may have a low score and Chemo may not be needed, maybe they are preparing me for it.

They have mentioned zoledex to me but I was a bit worried about it, mainly due to weight gain and headaches, I will write that on my list of questions. Also they haven't said anything about Progesterone to me I asked the Consultant and she didn't know? Not sure if I need too know this or not. 
 

I have never smoked or Drunk, I keep fit eat healthy, no bc in the family either just bad luck,.. 

Thanks so much again it's really helped xx

Hi Snow drop,

I'm so pleased it helped. Did you know you can look up Oncotype testing online which will explain the results. Like you I kept swinging from I have a grade 3 therefore chemo will probably be necessary to it's not in my lymph nodes so therefore it hasn't spread so maybe I won't need it. It was a horrible week, not knowing and trying to prepare myself (if you can) for chemo.

In the end my score was 16 so Chemo was going to give me a 1.6% benefit whereas hormone therapy was closer to 5% in my case so it was a no brainer. For me chemo would do more harm than good. My recurrence score was also low just 4%. I also called Breast Cancer Now for advice and they told me that Grade 3 tumours were relatively common.

Zoladex made me feel neausous and a little headachy when I first started it, but it soon settled. One thing to say is my periods continued for the first two months I was on Zoladex, then since the third month I've had no periods so don't be alarmed if you start and you still get a period. I haven't gained weight although I seem to be increasing in belly fat no matter how many sit up's I do! Worth mentioning that exercise can reduce the risk of recurrence by 28% so once you are recovered from treatment, find something you like doing and stick to it. I'm trying to do everything I can to stop this disease coming back.

Yes we had no family history of BC either, I guess it was just one of those things.

Good luck for tomorrow x

Hi!

I've coped really well on Tamoxifen, I have no joint pain apart from a little in my fingers if I am rubbing butter into flour to make pastry that makes them ache but apart from that nothing. To be honest sometimes I feel as though the Tamoxifen isn't working as I don't have any side effects from it and it hasn't lowered my libido.

Having said that a friend of mine on Tamoxifen has really bad joint pain so it is very individual. 

But as you say the Radiotherapy is having an impact and if you are coming to the end of your rads then you may well be feeling tired so it's hard to pin down what is causing what symptom. Give it a few more weeks and I'm sure any side effects will start to settle.

Good luck with the Zoladex if you decide to go down that route. x

Thank you, if I am honest I haven't had the courage to look anything up as I didn't want too give myself anymore anxiety if I read something that scared me.

I think I will give breast cancer now a call,

I was relatively fit but looking back their was a definite problem as I felt exhausted when I did any sort of Excersice.  

Thanks again xx 

I know what you mean you have to be careful about what you read online. I only went to trusted sources.

Good luck with Breast Cancer Now call, they are super lovely ladies and I'm sure you will feel better afterwards for the chat x

Evening,

I joined you lovely ladies on Wednesday when the consultant confirmed that 2 out of the 3 breast lumps were cancerous as was the one in my armpit and they were grade 3.  Apparently they are oestrogen receptive but before a decision about surgery can be made I've got to have an MRI to find out if the 2 breast lumps are linked or separate. 

I'm 44 and mother to 4 (12, almost 11, 5 and 3) and to be honest I never thought it would happen to me until Hubby found a lump and in my gut I knew.

Only told hubby, best friend and my bosses (i have 2 jobs). I'm not telling family until after Christmas when I know exactly what surgery I'm having but it's looking like I'll be on Tamoxifen, chemo and radiotherapy