Mum diagnosed with Brain tumour and Thyroid cancer

Hello,

This is my first post here so please bear with me. 
My mum was recently diagnosed with thyroid cancer, she went in for a CT scan to see if it had spread and during this scan they found a Meningioma. 

Thankfully the brain tumour is most likely benign but the doctors have said it's quite big and needs to come out ASAP. My mum also has what I suspect is undiagnosed anxiety and paranoia which began after she had a seizure last year, probably because of the tumour which the doctors think has been there 15+ years.

I'm just having a hard time coming to terms with this as my mum is only in her late 30s and im only 18. My mum has other young children with my youngest brother only being 6. This has absolutely torn me apart and I just can't come to terms with it. It feels like one thing after the other and I'm petrified at what this means for my mum and our family. My mum is extremely strong and really positive so we're trying to remain supportive in front of her but I can't lie, it's the worst time of my life and I'm really struggling to cope. 

I guess im just wondering if anyone has been through anything similar and it will be so comforting to hear how you've dealt with it. 
Me and my mum are practically best friends and I can not even begin to imagine life without her. Especially for my young siblings and I guess I just need reassurance or something. 
 

thank you x 

  • I haven't had to deal with the brain tumour or anything like that, but I did have thyroid cancer at about your mum's age - I was just turned 39 when diagnosed - and that isn't really the worst case in the world, to quote my surgeon.

    I realise your mum is dealing with a lot more besides, but just wanted to reassure you that thyroid cancer really isn't what you imagine when you hear cancer. At the age your mum and I are, the most common form of thyroid cancer has a near 100% survival rate and they don't usually use anything like chemotherapy, so it's unlikely she will be having ongoing treatment for it. It is usually just a matter of removing the thyroid and then possibly radioiodine treatment, which is basically just swallowing a capsule. You may need to help out with younger siblings for a couple of weeks after that, as she will have to isolate from young children for a while as she will be radioactive. It's just for their protection and that is assuming she even needs radioiodine treatment, which she may not.

    My treatment basically involved a week in hospital to have my thyroid removed, then another 3 or 4 weeks off work, but even then, I was mostly fine by the time I got out of hospital, just couldn't carry heavy stuff, my voice was a bit weak and couldn't fully turn my head (I'm a teacher so you can see why these things are necessary), then the radioiodine treatment some months later, which meant three days in hospital but that was only because I had to isolate - I was fine.

    Again, I do realise your mum's situation is different but just wanted to give you some information about thyroid cancer.

  • Thank you so much for your response, that has definitely calmed me down a little! 
    We knew about the thyroid cancer first and actually almost accepted it as everything we'd heard and read suggested it was pretty simple to treat and my mum would most likely be fine. I think the brain tumour just shocked us and because we just found out about the thyroid, it just felt a little much. 

    My mum had an appointment today and the doctor told us it was most likely T3 but there were nodules in her lungs which they aren't sure if it's the cancer or something else so will need to follow up with another scan in a few months but stage three just sounds scary. I'm just hoping it is a case of just removing both tumours and she'll be fine but it's just going to be a rough couple of months ahead and it's very frightening to think about! 
     

    Again, thank you for your response it's nice to see you've overcome it and doing well now! 

  • think T3 is different from stage 3. It wasn't a term that was used with me but from the googling I did, I think T3 just means the tumour is larger than 4cm, which would have made my tumour T3 but it was stage 1. 

    As far as I know (and I could be wrong about this) at your mum's and my age, most thyroid cancers are stage 2 if there is spread outside the neck (like to the lungs) and stage 1 if there is not.

    I hope all goes well for your mum. I am sure it's a really worrying situation for you both.

  • hi - i am sorry about your mum and the fact that she and your family are all so young. I do know that thyroid cancer is one of the best cancers to have (if there can be such a thing!) as it can usually be very successfully treated. As for the benign brain tumour - my Gran was daignosed with one and they said that she too could have had it for years and years. Hers was diagnosed after a few funny turns and they said it had to come out. However - they then treated her with a course of steroids which massively helped and she never really had any symptoms from it ever again. My stepmother was also diagnosed with one quite a few years ago after terrible headaches and a funny turn. I think she just has yearly scans and has been sky diving and all sorts so i know it must be incredibly scary but try not to jump to worst case scenarios x

  • Hi,

    Thank you so much for your reply, it's definitely made me feel a little better about the whole situation. It's just the waiting that's bothering me you know, we have no idea when she'll be in for surgery yet or how it will go I just want to skip ahead to her being fine and healed! 
     

    Oh well- hopefully all will be well and thank you again for the reassurance ️

  • Hello, 

    Yes you were right- doctor said it's difficult to stage at this point and they'll only really know when it's out. It's just a T3 based on size so hopefully no spread but only time will tell.
    Thank you for your response ️