Appendix NET worried sick

Diagnosed with NET following removed of appendix in June. Just had follow up surgery to remove part of bowl and some lymph nodes and have been informed today that there was cells in 2 of the lymph nodes.

Gutted to say the least and can't see any future now

  • Hi Joe.

    sorry to find you here. And sorry to find no ones replied to you post -hate seeing people asking for help and no one relied as yet....I asked for advice a few months ago and was so grateful to get a response.

    Sound like your having a rough time -well your in good company cos I am too.

    How's your appendix scar ? Bowel scar Healing well.
    Have you been given any results -grading ? Stage ? More tests , treatment Plan. 
    Infound out I had breast cancer in august -had lump out and some lymph out -I'm cancer free now (but told cos of my age and my stage 2growth rate I'm high risk of it coming back -was told just last week I need chemo. -I was relieved when they said chemo then radio and 10years of meds -Randomly-I've been in limbo , waiting , bit knownjnh anything for the last 7weeks/it's been driving me insane. Now I have a plan I feel a little bit more in control. 
    when your next appt? Take someone with you is you can to listen in to what's been said. 
    Write Down any questions you may have. Handy to have when your mind goes blank.

    Take a day at a time. Set yourself goals for each day/ mine is to get up and get showered most days lol

    dont be disheartened-I bet you've got loads to live for. The fight has just begun for both not us.

    keep me posted With your progress

    Efffie x