Sorry to hear they are so vague , seems more positive about the lungs being Covid scarring.

Perhaps they mean chemo by tablets ?

Glad you have some other support  I have a friend of a friend who has been a great comfort  and although I have only rung her twice I feel I could ask her anything.

I will be chasing my BCN by middle of this week for appointment for ultrasound on other breast , the MRI department rang but I said its supposed to be an ultrasound , so I dont even know if shes done the referral correctly. 

Did you get anywhere with the GP or hospital ? 

xx

Yes I'm definitely going to believe him rather than the tool ;) he must see this every day.

He said they may do a further CT after the chemo finishes but my first one was totally clear so you'd hope the chemo wouldn't allow anything to grow (not a very scientific opinion I appreciate!!).

Yes sometimes I think it's not worth giving everyone details as it wouldn't necessarily mean anything to them and we just have to keep going over it.

I got my planning appointment through for Wednesday. Another hurdle! What's happening with your further tests? 
 

I've got most mobility back now which is a relief and I'm glad you're doing well too! Have you been wearing a fake boob thingy? 
xxx

Thanks Minty and Mum. I did make some progress today in finding out what is happening and why. Area they are concerned about mets is adrenal only nurse said, she said they need 2018 CT report but they cannot get it, I need to and to contact hospital done at and get it sent to me. I did and they are sending disc to me which I then need to get to hospital asap (no idea why things can't be sent hospital to hospital) and will e-mail GP with report so need to get GP to notice that and forward it to hospital and hospital to notice it but has been found. Just wish I knew results. I am not seeing doctor for 2 weeks though think its the sizing is the main thing which hopefully is in report. GP responded to my frantic Friday message saying I would be called on Wednesday. 

Nurse did explain things more and they think a second primary or benign caused by an undiagnosed condition which needs treatment is causing it but mets is a possibility as well but that's better than the looks suscipious, could be mets from Friday. If mets would not do surgery and think its just endocrine therapy but btd. If benign may refer to endo for monitoring / treatment or may go private but less urgent than the cancer. If a primary cancer adrenal may be dealt with first by surgery though said not adrenal experts and may be more tests but if waiting for breast a while could put me on endocrine tablets now maybe so at least could be treatment. So bit better news. So feeling much more stable and a bit more confident in what doing, only thing concened about is mets treatment plan but hopefully won't need that and it maybe a standard thing. 

Glad you got most of your mobility back Mum and hope you get tests sorted soon Minty. Sorry my brain is a bit rambled at the moment. I have hardly slept for a few days though feel more relaxed (well as relaxed as you can feel through cancer testing) now. 

should be tbd not btd

Hi Silkie

Did you get a call from the GP ?

It all sounds so over complicated , and admin things you shouldn't have to worry about.

I hope you are still feeling a bit calmer.

This last week has been my worst since diagnosis tbh , its the uncertaincy which is a killer - nothing about ultrasound yet.

Mum - Yes worn softie when meeting people -been fine but people look at you like -I thought she'd had the op ???

How was the planning appointment ? , hope it felt positive and not too upsetting , Did they explain your results any more thoroughly ? and did they give you appointments ?  

Hugs x

Hi both

I hope you're both ok - any further updates?

my planning appointment went well. The oncologist was very positive and is giving me a whole host of treatments to prevent recurrence. Fingers crossed! Starting chemo in 3 weeks so am a bit anxious but at least I'll feel I'm doing something!

xxx

I tracked down my CT report from 2018 and drove it to my hospital, why they cant post things hospital to hospital idk. But that shows 8mm growth on adrenal mass since 2018 so think will be benign but yet to discuss with a doctor, just found research online. 

CT did not get booked so I had to chase that, offered 23 Dec, then asked for earlier x 2 and got Friday, did that OK.

Supposed to see doctor again but nurses will not book it in and said once booked in there will be a further 6 week delay before treatment. Very worried and looking at paying to go private as dont want it going to stage for, its around 10k, ouch. Really depressed with how much I have to fight for everything and all appointments are alone as well. GP got back to me after 3 days. 

Hi Silkie

Sorry it all sounds a bit dis jointed in their approach-very frustrating.

I think you are right to keep pushing and its good you have CT on Friday.

Dont mean to be negative but when I spoke to my BCN about going private -she said it won't necessarily speed things up , surgeon said the same - he has waiting list for private as well.

It is a very anxious time -and they are not helping -I haven't had ultrasound appointment date yet.

Are you sure that youre not allowed to take someone with you for appointments - mine are allowing that unless they change it next week. xx 

Hi 

Sorry I replied but must not have posted it.

Glad you felt positive after Oncologist appointment, maybe it won't be as bad as we imagine ( remind me of that and laugh when  we are climbing the walls )

Are you cold capping ? I am going for the shave I think.

Have you had a Covid booster ? I am going to ask about that too

xx