Hi 

Not too bad thanks , been doing the shoulder exercies and a little walk each day.Supposed to get wound check and dressing changed with  practice nurse  but they have absolutely no appointmants this week -so has to be Monday.

How are you feeling , hopefully they will take the drain out tomorrrow ? It didnt hurt at all taking them out.

I also have my follow up appointment with the consultant next Thursday.

Have you looked at the NHS Predict tool which gives a score as to the advantage of chemo.My benefit was 4% but it does say the scores  not that acurate  with tumours over 50mm which mine is.It says my 15 year survial rate is 87% that's without radiotherapy as well.

It sounds high but kept me awake for two hours as you think I could be in the 13% I guess its natural. 

xxx

Glad you're managing to get out. It sounds like a real pain to get appointments where you are - not good when you're post-op.  Drives me mad hearing things like that.

Good to hear drain removal doesn't hurt - you're blazing the trail for me at each stage so I know what's coming :)

I just had a look at that tool. Mine's not great over 15 years even with the treatments (I guess because of the lymphs) but that doesn't remotely reflect what my consultant has said. He's really positive that if I have all the treatment available I'll be fine. I suppose we have new research on our side all the time. 

let's hope we're in the surviving percentage!! 
 

xx 
 

Hi Ned 

How are you doing ?

Any date for clearance yet ? 

xxx

Dec 20th. I had a total meltdown on Sunday, told my husband I wasn't going to have the surgery because it's going to have such a big impact and I only had 1 positive node out of 3. It just seems like such a big thing to have done on basis of 1 node. I spoke to a nurse on Monday and she said they can't plan effective further treatment unless they can see if any other nodes are affected. I guess it also stops it coming back in the future. I really don't want it done but I don't feel there's any choice. Xx

Hi Ned

I had a mastectomy and axillary node clearance on Saturday. I just wanted to reassure you - I was very anxious in the run up to it but am feeling fine. The drains are a nuisance (they took one out today but I'm stuck with the other until Saturday) and it's all a bit uncomfortable but I've not been in any pain and am doing my exercises ok. Recovery is much quicker than I expected.

I am, I think, having chemo next as "belt and braces".

thinking of you - always here if you need a chat 

xxx

Hi 

How are you getting on ?

Good luck with your appointmant tomorrow x

Hi Ned

I hope hubby has kept the Covid  to himself!! 

Both drains now out and dressings off - weird getting used to looking at myself but also a reminder that the evil thing has gone!

Are you ok? 
 

xxx

Hiya

I'm ok thanks - trying to get back to normalish! How are you? 
 

Thanks re the appointment- yours is tomorrow too?

let me know how it goes - thinking of you xxx

Nope, I went down with it! Feeling surprisingly ok but I have a very bad rash around surgery site, I've had antihistamine tablets and steroid cream but it's not getting better so I'm going to have to get back in touch with doctor. The upside to this is that I've got enough time to recover before my next surgery and I now don't need to worry about getting it! Silver linings

stay safe!!! Xx