Lobular cancer - awaiting tests and so scared

I've been diagnosed with lobular breast cancer and referred for MRI, bone and CT scan.  I have two positive axillary nodes.  I am so anxious and scared and breaking down all the time thinking the results will be the worst case. Finding it hard to cope. The tumour was 1cm but I'm thinking with lobular it could be so big it's inoperable and I wouldn't know.

  • Hi

     

    Oh I'm so pleased , that's really good news- you must be relieved.

    I wonder how quickly they will book the lumpectomy ? Hope its soon so you will be more recovered from surgery for christmas.

    I'm OK thanks , I was just talking to a friend of a friend who had similar invasive breast cancer and active treatment was nine months , just confirms to me its not going to be a quick fix.

    Looking forward to a quiet weekend.

    Take Care xx 

     

  • Hello :)

    Got my appointment through today - 20th November. Told my little boy today as well. I tried to be positive for him and hopefully I'm right.

    I've also heard it's a bit of a slog, but this time next year it'll definitely all be over - let's keep that in our sights!!

    sending love xxxx

     

     

     

  • Hi 

    Well done for telling your son , I expect that was hard for you.I think they pick up on things anyway so at least he will know why you might be feeling tired or unwell and that the traetment is going to make you better.

    Is it another appointment on 20th or your surgery date ? 

    I'm trying to walk every day now as I am on countdown , have to self isolate after Sunday and starting to feel a bit restless about the mastectomy next Wednesday.

     

    Take care xx 

     

     

  • Aw you're nearly there now! It's scary but just think, after the op it'll be gone!! I'll be thinking of you.

    my op is on 20th. I saw the consultant again today and MDT have changed their mind and decided mastectomy. I have to decide by my pre op tomorrow whether to have a reconstruction. I'm thinking not at the moment.

    xxx

     

     

     

  • Just to let you know I'll be thinking of you tomorrow.  Let me know how you go. Lots of love xxx

  • Thanks for thinking of me , glad its here now , I will let you know xxx

  • Hi How are you doing ? Have you decided about the reconstruction ? 

    My surgery went OK but the surgeon was ill so had a different one , also saw a different breast care nurse.All the ward staff were lovely.

    Not much pain from the beast but bit sick and groggy after the anethetic.Also district nurse didnt turn up yesteday -day one .

    In hindsight I would have preferred to stay overnight in hospital.

    Sugeon said he took three lymph nodes which didnt look cancerours but pathology will confirm.

    I hope yours goes smoothly xxx

  • I just replied to this and somehow it disappeared!

    so good to hear from you and glad it went well. I hope you're recovering well.

    mine is tomorrow and I'm in over night. Not having reconstruction at this stage.

     

    I'll keep you posted - take care xxxxxx

  • Thats sounds like a good plan to me.

    Be thinking of you xxxx

  • I was diagnosed with lobular carcinoma. I had lumpectomy 3 weeks ago to remove 3cm lump, and 3 nodes. 1 was positive for cancer cells, now waiting for a date for auxiliary clearance. I've gone from 'nothing to worry about, just a cyst that has gone fiberous' to this. It's really tough, particularly as everything I've read on this page suggests that chemo is the follow up treatment. I'm devastated but trying to stay positive. It's tough, isn't it x