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When was your first meeting with breast cancer nurse?

JJ73
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Hi all,

I was diagnosed (I think) with BC on Friday. I think this mainly because I was assigned a BCN, even though I haven't had biopsy results back (they were just taken that day). Is it normal to meet you own BCN at this stage? Does this mean it's definitely cancer? The consultant initially thought not, the radiologist was obviously concerned.


The nurse was lovely but I think I'd feel better about my situation if I hadn't been introduced quite yet. It makes it all seem so final. I know they have to prepare you for the worst but is there a chance the biopsies could come back negative? Or am I clutching at straws? Please help, I'm swinging from holding onto a little hope to being absolutely desperate and thinking that she knows something awful that I don't, because she was *so* sympathetic. 


I would love to hear others' experiences and I'm sending love and strength to anyone going through this, especially those playing the waiting game. The last 2 days have felt like months!

xxx
 

  • Offline

    Hi 

     

    I just posted a new thread about diagnosis and stress.I just got diagnosed on tuesday. I felt pain and something unusual in my breast. Biopsy showed a small mass 1 cm but no lymph biopsy. However doctor has asked for full PET CT scan. I am now petrified that this could be secondary cancer. Since diagnosis I have developed all symptoms associated with secondary breast cancer: loss of appetite. Pain in back, difficulty breathing, stomach issues, hyperventilating etc. Speaking to the nurse she said the PET scan is not standard but that sometimes it is done as a precaution. BUt why for me? My scans are next week and then I will have to wait till 21 October to find out if I have a treatable cancer or, given the pet sca not,. I am driving myself insane. I am currently taking Valium to calm down, as I was basically drinking - bottle of wine a day to try and control mu anxiety. 

    Mir is the worst time, the limbo is driving me insane. I wish they could just diagnose and sort out, but my consultant says they need the tests to ensure the right treatment.

     

    I understand exactly how you feel. I hope someone on here can give us some advice on how to cope. I don't think my Valium options is sustainable as I have to go to work tomorrrow! 
     

    soery I can't offer more help but wanted to let you know you are not alone! 

     

  • Offline in reply to nny

    Hi nny,

    I'm so sorry for not replying to your reply before now! I'm not quite with it at the moment. I'm sure you'll understand. 

    I just want to say I hope your scans go/went ok and they don't find anything worrying. I'm terrified about being asked to go for more scans and I'd feel exactly the same as you. But it's so much better to check everything out than risk missing something. I am totally paranoid about cancer spreading now - every little twinge and ache has become a full-blown cancer self-diagnosis. 
     

    I have another week until I get my biopsy results. Swininging from positive (I know it's cancer but the tumour is small) to completely desperate, thinking it must have spread all over. 


    Let me know how you get on and rest assured you are not alone in your anxiety and insanity. This is the worst time but we'll come out the other side!!

    xxx

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