Hi Picklejaz,

Welcome to our forum.

I too am a Mucinous cancer survivor of 12 years. In that time I have had 2 bouts. First time I had a lumpectomy and I had a double mastectomy for the second bout a year later. It is exhausting when you are going through treatment, but you will look back on all of this soon, as you get back to a more normal life.

You must be finding it difficult when you cannot work at present. This can be a lonely and isolating disease, but only if you allow it to be. Now that you have found this forum, there is always someone here for you and, if I can help in any way, you only have to let me know.

Kind regards,

Jolamine xx

Hi jolomine 

thanks for replying. My hat goes off to you having to go through this twice!! Your amazing and so strong. My chemo has started the menopause off so also dealing with hot flushes and bad sweats. I then go really cold. It happens all the time and they say they can't help me with these symptoms. It is getting me down. Did this happen to you?

x

Hi Jenny

Trying to be busy but chemo is hard work unfortunately. I don't really know what I'm talking about but when someone else said mucinous Cancer I recognised the term from my paperwork. 
Good luck to you on your journey just keep talking and chatting on here with everyone we can all do this 

xx

Hi Mickey

it sounds awful but it's nice to have someone with the same problem as you if you know what I mean!!!  
 

yes the chemo is to shrink the tumour as mine is quite big. Thankfully it has shrunk a little so at least what I'm going through is worth it. After the op I then have to have radiotherapy !!!! Hopefully when you get your treatment plan if you have to have this too you will know it's all standard treatment. 
 

im glad I joined the chat too I was beginning to feel quite isolated. 
 

picklejazz xx

Hi picklejazz, 

I know exactly what you mean. Do you know if yours is pure or mixed? 
I am in awe of you, I just wanted to say that. I'm glad the chemo is shrinking the tumour though, but I know it must be so hard for you. Please don't feel alone, you're not and I know it really feels that way at times. X 

im under no illusion that my treatment plan will scare me further and I am really glad you joined this chat and don't feel isolated anymore. 
fyi, I am really suffering with the hot flushes and not steeping and not had chemo. My breast care nurse said they can give me something for that, so if you're still suffering with the flushes, ask yours. I'm sure they can sort it. 
big love Mickey xx 

Hi Picklejaz,

I didn't have chemo, but hormone therapy for 7 and a half years. First of all I had Tamoxifen and then Letrozole. I suffered terribly with sweats particularly at night. I was first of all advised to try Clonidene by my breast care nurse, but this did nothing for me. She then suggested that some women find that Venlafaxine (Effexor), an anti-depressant, helped. I was not keen to try this at first, but it did help. As a side line it also helped to improve my emotional state.

I find that I get particularly cold when I sweat in bed, especially when I have to visit the loo. The bed is wet and cold when I return and it can take quite some time to warm up again. Have a word with your breast care nurse and see what she suggests.

Kind regards,

Jolamine xx

Morning Jenny, feel groggy and sore this morning. Seeing consultant this pm, not that he can tell me much yet. Hope you find things to occupy your day off xx 

I'm sorry to hear that! I hope you feel better as the day goes on and you get a little more info this afternoon. At this stage, any action/contact has to be a good thing.
Good luck, let me know how you get on and treat yourself to something nice later. I have no idea what I'm going to do today. Try to stay off Google mainly! Xxx

Morning Mickey, I was just thinking about you! Good for you for taking time off work. And I'm really pleased that things are moving forward for you. Do you have a date for surgery? 

I'm convinced my right breast has shrunk just after my core biopsies. And there wasn't much breast to begin with! But I just don't care any more. I just want this whole thing to be over. I got sucked into Google a little bit yesterday but struggling to find anything I haven't already read. I was alone in the house so it was a long day. Tried to keep busy - I have a very clean kitchen! It's only a week since I was at the breast clinic, which is insane. Still feeling ok one minute and desperate the next. As is everyone here I think.

Enjoy your day off (as much as you can). It feels very autumnal out there this morning so stay cosy!

chat soon xxxx