Mam diagnosed with stage 4 glioblastoma today.

Hi all,

I got the news today that my mother has got glioblastoma stage 4.

My mam got brought to A&E 6 weeks ago because she was found disoriented and lost in the town where she has always lived. Last week she had her surgery to remove as much of her tumor as possible. Since then she has become more and more confused and tired. Her sight is very poor in her right eye, she needs a walking frame to walk and her right arm and leg are very weak. I have been told they will evaluate her to see if she is well enough for radiation but her surgeon doesn't think she is. It's so hard to see how frustrated she gets at being in hospital. She thinks she is being detained by the nurses for no reason and she keeps begging me to get her out of there. She keeps asking why my Dad can't come see her even though he passed away 9 years ago. Her conversations just repeat over and over. Her speech is so slurred and she doesn't seem to always understand me. I'm really worried that even though I only got the diagnosis today that I don't have much time left with her. I just feel like everything is happening so quickly.

Anyone who would like to chat and share experiences I would really appreciate it. I am an only child so I don't have any siblings for support and I'm just feeling so alone and lost at the moment.

  • Hi Emilymt,

    Welcome to Cancer Chat. I'm so sorry to hear about the situation with your mum. This sounds incredibly difficult and like it's happened quickly so I'm sure you must be feeling a lot of different emotions.

    Hopefully you will get all the information you need from the specialist soon so that you can understand what the next steps may be.

    I also hope that this forum can provide some small support to you, even if it's just a safe space to write things down and reach out to others. You may receive further replies to your post - and you can of course also browse or search the forum for other relevant discussions and people to speak to if you would like to.

    Take care and wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi Emilymt,

    sorry to hear about your mam. My daughter had Gmb and it is heartbreaking to watch them go through this horrible disease. If you want to ask anything I will try and share with you, although there are lots of differences.

    take care, stay strong

    Mum76 

  • Hi Mum76,

    Its been a rough few weeks, mam is now in the hospice and has not woken for 2 days straight now and we know she won't wake again. They say it's a matter of days. The important thing is that she is comfy now and I'm by her side until she feels ready to leave us. 

    Thank you for replying. 

    Emily

  • Hi Emily, 

    I just wanted to say you're in my thoughts. I'm sorry to read about your mam, and hope she is peaceful and you are ok. 

    Jane xxx